Anybody else come off of zoladex and experience horrendous hip pain and ache?

[maria1997]

Finished a 9 month course of zoladex early as could not deal with side effects, had my 6th injection 2 months ago, now suffering, can't even walk around school/work. Has anybody else had this?

[cupcakegirl]

I had a two year course of zoladex which ended in 2009. I've had terrible hip and knee pain since about 2008 and I still don't know why. Scarily I was on it without HRT and have never had a bone scan, but I haven't broken any bones or anything so my bones can't be too bad.

I think I may have another undiagnosed condition because of the fatigue that's been put down to ME without ruling anything out, plus the joint pain and a whole host of other weird symptoms. In terms of this kind of symptoms, usually my hips and knees hurt if I lie or sit still for more than a few minutes. It tends to come in phases, where it will improve for a month or so and then return just as badly, and them go again. I also have weakness in my hands, I can't grip and turn things like lids and caps of bottles / jars. I also get bad tailbone pain when I sit on a hard surface.

I suspect I may have an underactive thyroid but it could be a form of arthritis or lupus so I'm going to ask my GP for some blood tests when I go next week.

Definitely speak to your doctor - you may need some X-rays and scans to see if there's a problem. Do let me know how you get on.

[maria1997 in reply to cupcakegirl]

I have a blood clotting condition so I also wasn't allowed hrt. I'm booking doctors tomorrow morning. I'm finding that my joints are clicking a lot, but today I couldn't even sit in a chair properly, I've been laying with a pillow under me all day, I'm im a right pickle lol

[Abbs]

I had shin pain for more than a year it was hell no painkiller could take the pain away

[Pands]

Yes me, I had a 6 month course in 2012 and only just made it to the end of the 6 months. Worked brilliantly for my endo symptoms but caused a massive flare up of my rheumatoid arthritis about month 5 that has had knock on effects to today - my joints have degenerated from damage at top speed. I am not allowed to go on the zoladex again- I probably shouldn't have been on it in the first place but the consultants don't speak to each other and there were no specific contraindications so I was put on zoladex after excision surgery.

Anyway... yes! For me I had tons of knee/shoulder/foot/hip pain but was linked to my RA (which I have had for years) but absolutely linked to the zoladex injections.

[Lillil]

Yes!

The same as the others after six months of zoladex still have on and off severe joint pain along with other strange symptoms. When it's at it's worst I can't cut my food up or walk upstairs properly. A good day they just ache. When they are really bad my large joints click a lot.

My gp thinks it's because I am on depo now. I think my body doesn't know if it's coming or going - it's been subjected to fake menopause and fake pregnancy in same year.

I also think a lot of it is referred pain. If you have endo in pouch of douglass, bowel or ligaments you are more likely to get hip pain.

It can also be a sign of adenomyosis which they think i have too xxx