Hi,I am in the very same situation as you both! I have been very successfully treated for my endo and adhesions for 5 years - synarel,
then decapeptyl,then depo provera,but now my bone density is lowered and my gynaecologist saying they will not treat me longer term with the progesterone due to this and my only option is total pelvic clearance.
As I have had numerous surgeries to ablate and cut,as well as appendectomy,2 caesarean sections all with very bad complication,.I am very reluctant to have surgery.As Juleyann says any surgery will create more adhesions.
Unless the endo is confined to the womb and they can guarantee to get it all out,then what happens is they put you on HRT after surgery, which feeds the deposits still attached elsewhere
.In my case,I am glued together inside.I also have adenomyosis ,so hysterectomy would help this part,
So in desperation I am consulting a medicinal herbalist and am radically altering my diet have been gluten and dairy free 10yrs, gone organic as much as can afford.Meat and chicken are particularly bad as they are fed a cocktail of hormones and antibiotics.I now have organic meat and chicken and though it is twice the price,we eat half the quantity now.Another thing that is bad is soya and this has been my alternative to dairy,so this I am going to cut out.There are lots of great books and websites on the natural treatment of endometriosis -they get to the root cause,Herbalist will look at the whole body and try to sort out the root problem which she says is toxicity and poor elimination,causing inflammation.She is giving me a tincture containing herbs for pelvic clearance,liver function as well as an enzyme called serapeptase.Do look this up if interested - it breaks down fibrous tissue and seem to be rather a wonder drug,though totally unacknowledged by NHS.Interesting that in Japan and Europe is is used widely after operations.I am at the stage I will try anything to avoid any more surgery( I am 48yrs).I also take physillium husk,vitamin C powder and spirulina every morning,mixed into a fruit smoothie.This has greatly helped my Ibs and tendency to get bunged up when the pain is severe.I would recommend the physillium husk -cheapest place to get is on amazon.
I am in early days yet as I have only been taking the herbs and serapeptase for a week.sowill keep you posted if interested.
One thing I have noticed with endo is that the treatments make you feel you have lost control of your body.The body is remarkable and has thea bility to self heal,given the correct nutrients are being given.I am hoping an dpraying that this gentler approach will prevent the need for surgery.In the end we are all in different circumstances,so it has to be an individual ,but well informed choice.
Do let us know how things going -it is good to find this forum -I have just joined.