Brief History: Endo for 3 years, diagnosis 3years ago, age: 26.
I was just wondering has anyone else got severe pelvic AND vaginal pain? Its crazy caus I often find its painful to sit down, to walk, to go to the toilet...pretty much anything.
I keep reading that exercize helps, but for me it makes the pain a million times worse. The vaginal pain is the worst. its like a deep burning and soreness. when its at its worst nothing helps. the rest of the time i just grin and bear it.
I was recently diagnosed with a rectocele (back in december) following a proctogram test (you poop and have x ray to see how your bowels work). It turns out that part of my bowel wall muscle doesnt work properly. This may be due to previous surgery or chronic constipation apparently. it is basically a prolapse of the bowel into the vagina. i cant feel any lump inside the vagina, but it is very painful and as i say all the above activities make it worse. it is definitely separate to my pelvic pain, although many things trigger both. has anyone else similar symptoms or diagnosis?im still waiting to see the consultant since 9 months now following my test. following 3 cancelled appointments i have not seen him to find out what happens next. he mentioned that i would probably require surgery, so its reassuring to know that 9 months later i still havent moved forward towards that...or any other pain management goal...(not). i have been seeing a pelvic physio who is meant to be helping me to build up my pelvic muscles as this should help the rectocele (no luck yet though after 9 months of physio).
im getting married in 4 weeks, and i just would like to have at least a pathway forward some pain reduction, and most importantly, after 4 years of no sex in our relationship, it would be nice to at least be able to share some intimacy with my husband. i know its not everything, but it often makes me feel inadequate in some way and i feel like i want to be closer to him than i can be. i dont know whether its the rectocele or the endo though which is causing this type of my pain. there are so many types and whilst im convinced they are all endo related, my consultant doesnt think that any of them are. he keeps telling me there is nothing more they can do. the only other option ive been given is prostrap etc. which i dont want to do as mentally i cant handle the side effects on top of work and studies. and also i would like to try for a family (if i can actually have sex) some time after i get married.
thats another interesting question actually ... i wonder if anyone has any experience of having a baby without being able to have sex? i asked my consultatn about IVF or something like that because sex is seriously just agonising, but he said that i just have to grin and bear it if i want a baby...there must be another way?