Action Group NEEDS YOU!

[Chippers]

Hi all,

It's wonderful that we can all offer each other support on this site. Thank God for it at times, as its been my only avenue to vent my feelings honestly. After 20+ years of suffering and another night of pain, I've had enough (again!). We all say that at some time don't we?

Anyhoo a few of us are keen to raise awareness nationally and are looking to set up an Action/Steering Group to organise our campaign. It would be fantastic if you'd get involved whether a teenager or older, there's a whole spectrum of psychological and emotional effects relating to this life-destroying disease. Let's show that it affects any age, shape size and profession indiscriminately.

I do think we need to get properly organised and have a key objective to achieve. For instance, I'm extremely passionate about lobbying government to recognise this disease and help set up consistent health care across the UK, not to mention the benefit issues for those of us who struggle to hold down a career because of it. Some of the other members have some fantastic marketing ideas.

Come on ladies, let's unite and try. It'd be great if you'd email my personal address below.

My email: [e-mail]

Sorry if I sound a bit driven this morning, I've been awake all night in pain. Feel better for that rant - thanks for reading xxx

[JaneHJ_CEO]

Hi everyone

Thanks for using the Endometriosis UK Health Unlocked forum. Actually raising awareness is exactly what Endometriosis UK is set up to do - as well as providing support and information. However as we are only a small charity one of the things we lack is 'hands' to get involved. Information, campaigning materials and Awareness Week activities are all available on the website - endometriosis-uk.org and I hope you will visit there, sign up for our regular monthly e-newsletter (joining 21,000 others) to find out what else is happening.

I hope that we could all work together on these things rather than separately as there are a number of things in the pipeline that could benefit from enthusiastic volunteers.

Many thanks

Helen

[LeyaC in reply to JaneHJ_CEO]

Go on Helen, pull it across us all again, remember everyone, you can't raise awareness yourself because its not allowed blah blah blah!!!

Get fed up sometimes of people restricting us for NO reason...ridiculous!!