Regarding my previous post about me writing to my local mp to get this horrid disease recognised...
I would just like to say, I'm so glad to be the inspiration to you all for giving you the idea and a big well done to you all who have written to your own MP's. Let hope together we can all make a difference
Here is what I wrote to my MP if any of you would like to use it as a template;
Hello sir,
My name is Shanice Stanier, I am 20 years old.
I am wondering if you could possibly help me. I got diagnosed with a condition called endometriosis in February last year, after suffering from chronic pain for so many years, I finally got a diagnosis.
It is believed to affect over 2 million women in the UK. It is a horrible, painful, debilitating condition that not only causes horrific pain, it also puts a strain on your family life, relationships, work life, mentality. We suffer with constant fatigue, tiredness, pain, but people do not understand what we are going through. It is also the main cause for infertility in the UK. I would just like to ask you if you could possibly help to get this disease recognised. People lose their jobs because of the condition, employers don't understand and think that it is just normal periods and think that we know when the pain is going to come on, but that is just not the case. Myself and a lot of other women think this disease should be classed as a disability, due to the symptoms of this horrible illness.
If you could do some research on this condition & possibly visit endometriosisUK on health unlocked and look at some of the posts on there and how this condition affects us ladies.
Thank you very much sir.
I look forward to a reply from you.
Yours sincerely,
Shanice Stanier
Lots of love girls xxxx
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shazlovesevo
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Have you got a copy of the email you sent to your MP? Just think maybe we could use it as it of a template and then add some of our own experiences to personalize it. I'm currently on ESA and only because I won my appeal based on my mental health rather than the physical symptoms of endometriosis so thats something I would defo contact my MP about.
I am wondering if you could possibly help me. I got diagnosed with a condition called endometriosis in February last year, after suffering from chronic pain for so many years, I finally got a diagnosis.
It is believed to affect over 2 million women in the UK. It is a horrible, painful, debilitating condition that not only causes horrific pain, it also puts a strain on your family life, relationships, work life, mentality. We suffer with constant fatigue, tiredness, pain, but people do not understand what we are going through. It is also the main cause for infertility in the UK. I would just like to ask you if you could possibly help to get this disease recognised. People lose their jobs because of the condition, employers don't understand and think that it is just normal periods and think that we know when the pain is going to come on, but that is just not the case. Myself and a lot of other women think this disease should be classed as a disability, due to the symptoms of this horrible illness.
If you could do some research on this condition & possibly visit endometriosisUK on health unlocked and look at some of the posts on there and how this condition affects us ladies.
Here is my personalised version. I think i may have harped on a bit too much. But then again I dont really care. He'll either read it or he wont.
Dear Geraint Davies MP
My name is Hannah Nicholas, I am 33 years old.
I am wondering if you could possibly help me. I got diagnosed with a condition called endometriosis 2 weeks ago, after suffering from chronic pain for many years I was relieved to finally get a diagnosis.
It is believed to affect over 2 million women in the UK. It is a horrible, painful, debilitating condition that not only causes horrific pain but it also puts a strain on your family life, relationships, work life, and mental health. We suffer with a myriad of symptoms including constant fatigue, pelvic pain, back pain, and IBS type symptoms amongst others. It is also the main cause for infertility in the UK. I would just like to ask you if you could possibly help to get this disease recognised. People lose their jobs because of the condition, employers don't understand and think that it is just normal periods and think that we know when the pain is going to come on, but that is just not the case. Myself and a lot of other women think this disease should be classed as a disability, due to the symptoms of this horrible illness.
In particular my symptoms worsened significantly in June last year. I applied for ESA in October and failed my initial assessment and was declared fit to work. In May this year I won my case on appeal and have been placed in the Work Related Activity Group (Group). This was only due to Regulation 29 which states that if I was found fit to work this would result in a significant risk to my mental health. The toll this disease takes on a woman’s mental health is largely due to the average diagnosis time being 7.5 years and it is undoubtedly a hard disease to diagnose. I have been told repeatedly that there is nothing physically wrong with me, that it’s all psychological, that I have anxiety and that anti-depressants are the cure. While I am relieved to have won my ESA appeal I am still disappointed that the debilitating physical symptoms of this condition were not enough on their own to preclude me from working and ensure continuing receipt of ESA.
I am now awaiting surgery at the Cardiff Endometriosis Centre to remove the endometrial tissue from my internal organs including the bowel and the bladder. This will be quite extensive surgery and will require at least 2 months of recovery time. Despite all my symptoms and the fact that I require extensive surgery I am amazed that this disease is not classed as disability or even seen as serious enough to qualify for ESA.
If you wanted to do some further research on this condition you could visit endometriosis-uk.org/ and look at some of the posts on there, it would be an eye-opening experience. It is a horrible, painful condition that leaves a lot of women suffering in silence for many years.
As I live in Wales i also have an Assembly member as well so I have emailed her too. Thanks for the great idea. I feel like I've at least done something productive today, well more productive than making silly endo memes
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xx
made me giggle xxx
My 'specialist' says that if I am having pain whilst having Prostap injection's, then it can't be Endometriosis. She's wrong isnt she?
Hi from the U.S.
Are there any fellow Catamenial Pneumothorax (endo on the lung) women out there?
Should I complain about doctor?
Endometriosis / disability 
