Back to square one.....: So after 14 years... - Endometriosis UK

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Back to square one.....

johewer profile image
3 Replies

So after 14 years I'm back to square one, I've had attacks of pain 2-3 times a month the last couple of months. Always had strong painkillers on hand before but had ran out and doc told me not to take ibuprofen as it could damage a small foetus if I was to get pregnant. But it was finally unbearable I had to go to a & e for morphine last night. The pain is getting higher in my abdomen and seems to switch between left right centre month to month etc. it's accompanied by the usual pains down below & up my back passage which is what makes me think its endo spread. But it does feel different & in a higher location in my body but I had bloods run and urine & doc said there is no other sign of infection in my abdomen. I've been worried its gallbladder, appendix etc due to the intense attacks of pain. Hurts to have sex, wee, open my bowels everything! The doc at a&e last night gave me some stronger painkillers than what my gp gave me & he said he would write to my gp. I feel really down today after months of trying, irregular bleeding & attacks of pain with the knowledge that I've got to wait for referral before they will start investigations, don't know how much more of it I can take :( back to how it was as a teenager, going to a & e when I'm in pain for morphine...back to square one!!

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johewer
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3 Replies

You sound a bit like me. I lasted 13 years and its come back again. Pain also switches from right, left and lower abdo although I do have constant pain on the right. Lower back pain too.

I am lucky I think as I went to the doctors in agony, crying, emotional and he admitted me straight away. I stayed in hosp 2 nights while they assessed me. I am due a Lap and Hysteroscopy 15thJuly which is only 6 weeks later.

I have a fibroid cyst in my womb and suspected Endo back again.

I have been off work and now they are also assessing me, but i'm sure it will fine with them.

I can barely walk most days, or mostly potter.

I am dreading the surgery and what they might find, but it needs sorting.

Best of luck to you xx

daniellewright profile image
daniellewright

Hi x Ask to be screened for adenomyosis by MRI. It is often missed and gives symptoms such as the ones you describe. For more info please visit adenomyosisadviceassociatio... x Danielle x

johewer profile image
johewer

I was diagnosed at 15 after 1 year of going to docs & a&e, had a lap, no laser, they decided to treat me with back to back pill. Another lap with laser at 19, less than 2 years later I went onto depo the contraceptive injection. Had 5 pain free period free happy years before suffering with more pains & being advised to come off injection, had another lap and laser at 26 went back on injection as was planning my wedding & now I've been off it for 9 months since the wedding trying to conceive. I have not suffered permanently with this for 14 years but it doesn't take long to get run down from it. I bled regularly between sept-feb then bled permanently for a month this march & my problems have worsened since then really with these pains & irregular bleeding. Thank you Danielle that's most helpful I've never heard of that before so the researching starts here! :) xx

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