Just wanted to write to see if other have similar feelings. I have posted a few questions in the past and having recently had lap number 3 which finally led to a diagnosis thought things were moving in the right direction.
I though my pain had improved but it hasn't, I am really frustrated and don't know what the future will hold.
I have pain which is always there and worsens when I walk around I also then have what I would call the period type cramping pains. Following prostap injections my period has disappeared, so no cramps at the mo, but still have the chronic pain.not being mobile is a nightmare, can't walk far etc. how do people cope if they aren't mobile? Are there any other members who can't walk because of all this? This is what is I am finding the scariest thing.
I am very luck to have a daughter but am now accepting I will not have another child.I am completely skint as I can't work at the moment.I have lost friends as they don't understand. I am very lucky to have a great partner.
I think next stop will be the pain clinic but to me that's admitting I will always be like this, but I do need help manging pain. Tramadol just isn't doing it.
Any advice from members who have been where I am now would be greatly appreciated. I built my hopes up that the last surgery would work and now feel really down. My chronic pain is caused (I think) by adhesions where I had a dermoid cyst and everything stuck together so diet won't improve it either.
Any ideas anyone? Mainly on managing pain but also generally not going round the bend!!!!!!!
Hi, I just wanted to say I totally understand where you're coming from! I too am at the stage where it's zoladex/prostap or I can barely function and I too have chronic pain. Tramadol eases things but not 100%.
Something I would definitely recommend to you if you haven't tried it already is a TENS machine. You can place the pads where you feel the pain and they have a direct effect - it's wonderful! The one I have is from boots and is honestly the best £40 I ever spent. It's really helped me keep mobile as I use it when walking around.
Having been to Pain Clinic myself I would recommend discussing drugs like Gabapentin or Pregabalin with your GP before you go as these will probably be suggested first!
As for coping - is there a local support group? I don't know where I'd be without mine.
Hope this helps - feel free to ask more questions/chat xxxx