hysterectomy

[butterfly1]

This might sound silly but why doesn't having a hysterectomy get rid of endo, i don't understand any of it. thanks

[claire-w]

I think its becasue endo can also effect the bladder and the bowel. although no new cells can migrate from the uterus once its removed the damage or irritation that may have occured to bladder and bowel may still cause pain post hysterectomy.Hope thsis helps

[CLS1]

i was put on the waiting list for a hysterectomy on thursday & while i have been told i will never be totally pain free i am better to have the op now before i have too much damage to my bladder & bowel, although at 38 having this operation including removing my overies is very scary

[lainey37]

i had a full hysterectomy last june ,i had stage 4 endo and endo had spread to bowel .Im on hrt now for the nxt 15yrs + but it doesnt go without risks as endo can grow back with the eostrogen in it.Need to protect my bones ,sadly im still in pain 7 mths on and currently waiting on ultrasound and mri scan as i have terrible leg/groin pain .Dont regret getting this done but i cant really see any benefit from it ,just more complications xx

[Hidden in reply to lainey37]

I'm really interested, as I'm currently deciding whether to go for my hysterectomy or not. Can they explain to you why the pain is still there and if it will ease over time? Does the endo that is left eventually 'die off' as fed by less oestrogen? Are you having the same pain you had from the endo before the op, or is it different/less? so sorry to have lots of questions! I know they can't remove some of my endo so I'm trying to weigh up whether it's worth having the hysterectomy or not. I'm sure they've told me that if I reacted well to zoladex in the past then there's a good chance I could react well to the hysterectomy. But it's such a big decision. Wish you well

[lainey37 in reply to Hidden]

hi hunny ,nice surprise your post popped up ,been about 4 yrs since i posted .Well things are not good .Im still ill ,chronic pain in legs groin back .Im now on morphine and tramadol and antidepressants .Sadly makes no difference to my pain ,Im under pain management clinic in edinburgh and im actually back to that nobody believes me ,and how bad it is at times .All symptoms have returned and i cry most days ,trying to look after my wee twin boys and run my business ,There was 4 off my friend that got the full op around same time ,each off us id still having problems ,I regret having it done ,ive no life ,lost friends ,dont go out ,im 42 now and feel old befor my time ,But you may be different ,but googgle leg pain after hysterectomy and its cmmon xx,take care xx

[Hidden in reply to lainey37]

Hello, I'm so sorry if I dragged things up again for you. I'm new on here and didn't realise how old your posts were until after I pressed 'send'! But thanks for coming back. I'm really sorry to hear things have not worked well for you. I will certainly do some research on leg pain as I want to make as informed decision as I can. And as my endo pain already effects my right leg I don't want that made worse. I'm so sorry to hear of your pain and feeling like people don't believe you again. I'm sure most of us with endo have experienced that and it's heartbreaking and frustrating, and not helpful. I wish you all the very best and hope you are able to find some relief somehow soon. Take care x

[JeanOsborne in reply to Hidden]

The reason a hysterectomy is not a cure for endo is because it is outside of the uterus. Endo feeds off oestrogen. Even if you have your ovaries removed there is no garuantee as endo produces its own oestrogen.

[Hidden in reply to JeanOsborne]

Thank you. It's still something I can't quite get my head around! I'll ask my consultant to try to explain it to me again when I next see him. It's the bit I'm worried about, as I already know they can't remove some of my disease because of where it is. So if there's still a good chance of the remaining endo causing problems or even spreading still, it will make me have think really carefully about the op

[JeanOsborne in reply to Hidden]

When you say they can't remove it where is it located?