Hi all, been through hell for the last year, currently I am in pain, exhausted and worried sick, I am also fighting with DR's when I am really too ill to fight.
The rheumatologist I saw said he thought I had CFS yet he didn't give me any options.
Below is my latest trip to the DR's and the reply's I got from her, I burst into tears in front of her and all she could say was have a nice holiday.
I went back to my DR yesterday to speak to her and tell her I was not coping with either the pain or the exhaustion, I was also a little worried as I have been having pain in my calf (new pain) and am flying long haul in a few weeks and I also wanted to sort out my pain medication so that I would have enough for the time I was away.
The DR's response was "well its great that nothing was found by the rheumatologist aye"
"why do you need painkillers?"
and the classic "I would only be worried about a pain in your calf if it was a DVT" yes I replied that's why I am reporting it!
I walked out crying, totally forgot to say that the rheumatologist told me I have arthritis in my feet, that he thinks I have a nerve issue in my feet (hence the amitriptyline) and that he thinks that the exhaustion is due to chronic fatigue syndrome, I am at a loss as to where to go for help or how to explain to anyone that the DR'S are basically ignoring my plea's for help, she looked at me yesterday as if I was mad and obviously doesn't read her patients notes.
I have been crying all night over this, because all I want is to feel human again, who can I talk to about what I am going through if not the DR, and what do I do if the DR fobs me off, to be honest I am feeling suicidal not because I am suffering but because I am being treated so badly by the DR.
I hope you manage to get a little further than I have and I wish you the best of luck with the fight you are about to begin, for me I fear the fight is over, I have neither the energy or the right mind to continue to make myself so upset, I will now just continue to struggle with my life.xx
has anyone been met with such lack of empathy from their DR's or had such a severe issue with getting anyone to listen to them.x