Both my children have been diagnosed with chronic fatigue syndrome. They are on nhs treatment plans with an occupational therapist. They also have other conditions and are under other consultants. One is under neurology for a condition called syringomyelia and the other is under a different neurologist because he is having seizures and abnormalities have been discovered with his recent MRI brain scan that warrant further investigation. Our problem lies with the occupational therapist. She is pleasant enough but very domineering and will assume things you haven't said to her. She has been trying to interfere with the consultants investigations into one of our sons seizures. Prior to the abnormal MRI she told our son that the tests would be normal and then tried to suggest to the consultant that his seizures were because of his cfc and migraine. She then told us that his MRI results were normal but when we saw the consultant we were told that they have come back with abnormalities. Basically all our Children's health complaints have to be associated with cfs and not possibly any other condition. This has been quite destructive. She told a general consultant that both our children had improved when they haven't and one was taken off his books and a report was done by him to suggest he was well. This one was the son with the seizures. We are not happy. Our children don't like her or he treatment methods and are now refusing to take part and we are at a loss as to what to do next. The only good thing she has done is to refer them both for hospital educational support as they find it too difficult to attend school at the moment. Can we request another OT in a different area or even ask our GP take over their care as they simply don't relate to the therapist or the plans they have been put on. If anyone can advise will be grateful.
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