Hi all, this may sound a little strange coming from someone who's been ill for 2 years, but to be honest I was sure back in November 2010 that I'd be better in a few weeks, and as time has gone on it's taken me a while to accept that this is as good as it gets for now at least. I know all the usual ME symptoms (it was reading up on them that made me realise I had ME in the first place!) but please, can anyone help me feel less insane and isolated?
Firstly, did anyone else's GP spend MONTHS trying to convince them they were just stressed and/or depressed? I had to fight with mine for over 5 months before he accepted this; it got so bad that he was causing migraines whenever I so much as thought about going to see him, never mind actually crossing the surgery threshold!
Secondly, I have ended up on an absolute raft of medication for various symptoms. I've had asthma since I was 8 so have always had inhalers, but it seems to have got so much worse over the last 2 years. Now I also have digestion problems which I have to take a Proton Pump Inhibitor for, horrific migraines which I need a preventative for as well as something to take when I get an attack, a tricyclic antidepressant for neuralgia, co-codamol for muscle pain which quite often feels like someone is shredding my muscles from inside my body, sinus problems, allergies, semi-permanent nausea (for which I have Buccastem) and chronic dizziness. Does anyone else feel like this? I have small children and quite honestly every day is an effort to drag myself through, because of course they need cooking for and cleaning up after, and I need to do the school and nursery runs.
I just really am hoping for someone to understand where I'm coming from. I try not to talk about it too much to friends and family, because I don't think they need to hear me go on all the time about how bad I feel! But as a result I do feel a bit lost with it all.
Thanks for any help anyone can offer.