Hello, I badly need some thoughts about my increasing fatigue and weakness, which recently has increased to the point where I am effectively confined to the sofa all day, and becoming very anxious.
I am 57 and until last year, very active and working full time. But this year, I was diagnosed with mixed tissue auto-immune disorder. I have significant lung involvement and have been on hydroxychloroquine and prednisilone for several months. This seems to have helped with both the lung function and joint pain.
However, the main symptom is extreme fatigue and weakness and these have got alarmingly worse. My current situation is that I wake feeling nauseous and weak - I can hardly bear the thought of having to rise from bed. Getting dressed leaves me shaking with exhaustion, and I am too nauseous to eat more than a few mouthfuls of breakfast. I spend the entire day sitting on the sofa, and any exertion (eg to go to the loo) leaves me shaking and nauseous. As the day goes on, I find I get sweats and uncontrollable shivering, and recently palpitations too (my resting heart rate is now around 100!).
I have had several discussions with my rheumatology and respiratory consultants, who have suggested opportunistic infections as an explanation. But numerous tests for infections have turned up nothing. My GP sent me to A&E last week owing to the heart symptoms - no heart abnormalities were found.
Chronic Fatigue and/or PoTS? What tests/referrals should I be seeking? How best to get this taken seriously?