Ckd stage3b fatigue

[Bear82655]

Have recently been diagnosed with ckd stage 3b at 34. I have been battling fatigue for quite some time now but i also struggle to get to sleep. Gp and hospital have both said there isnt much they can do except advise me to try calms... I have tried this it only works from time to time. Iv cut caffiene right down since being diagnosed and i feel a little more fatigued for doing it. Wandering if any one else out there is similar and also what do you do to combat it.

[MAS_Nurse]

Hello Bear82655 and welcome to this supportive community. Sorry to hear about your fatigue and your struggles to sleep.

Have a look at the recent post to this community in the link below. This is from a member at Stage 3b who also has issues with fatigue. In the responses our members have lots of useful tips and advice.

healthunlocked.com/early-ck...

I have also included a link to a useful site which also has a lot of information about sleep issues and chronic kidney disease

davita.com/education/ckd-li...

Please let us know how you are getting on.

MAS Nurse & Moderator

[Hidden]

See your GP, (not your nephrologist) about a good quality vitamin and melatonin, get moderate exercise. Don't get crazy with it. Approach Da Vita diets very carefully: they are in the dialysis BUSINESS.

[Zazzel in reply to Hidden]

Melatonin can easily be found over the counter. I take melatonin as well which has helped me a lot to sleep, however, do be very cautious of this.

Melatonin can cause depression and even suicidal thoughts in certain individuals among other side effects. When I first started taking it, my doctor told me to start low and gradually increase until it helped me sleep. Once I got to 6 mg a night, I started getting depressed and couldn’t figure out why as nothing had changed. I remember one particularly bad night. Coincidently after that night, I had gone to a Naturopath who told me I only needed about 1mg of melatonin, but we didn’t discuss the depression. I I immediately reduced my amount to 1mg. After that the depression was gone. About a year later someone told me on a different forum to be careful suggesting melatonin due to these very issues. It was then that I figured out what had happened with me. So, now I just like to share that word of caution.

Here are a few articles relating to it.

mayoclinic.org/healthy-life...

huffpost.com/entry/the-dark...

[Bassetmommer in reply to Zazzel]

HI Zazzel,

Yes melatonin has a strange effect on some people. I would wake up and felt hung over and cranky. I stopped it and the hangover went away. But being cranky was because I was overworked. That went a way when I retired.

I have switched to CBD oil to sleep and for me it works. But it was approved by all of my doctors before I took it. I take it for pain management and sleep only.

[Zazzel in reply to Bassetmommer]

Glad you aren’t cranky anymore . Lol!😂😂😂 I’m Looking forward to retiring some day! So, for the CBD oil, was there any issues with the kidneys? I’ve heard it helps a lot with pain. I’ve tried everything for this shoulder pain including physical therapy. I won’t take any kind of over the counter pains killer, but was thinking maybe CBD oil might help.

[Bassetmommer in reply to Zazzel]

Again, for me, it works great My pain would often wake me up at night and then of course I would perseverate on it. The oil just let's me sleep and I do get up at least once for the potty and go back asleep. Before, going back to sleep would not happen easily.

So.... I vetted this out with my health team and they all were on board with it. But...you really need to check it out with your team.

Also, be aware there is a lot of crap out there now. I get a specific brand from the local store that is high concentration. It is not cheap. I started out with a lower dose and it was ok, but this stuff is great...FOR ME.

[Zazzel in reply to Bassetmommer]

Thanks for your thoughts!