Lala (Mother and Grandmother): I’m a... - Early CKD Support

Early CKD Support

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Lala (Mother and Grandmother)

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I’m a Survivor of cancer renal cell carcinoma and had one of my kidneys removed two years ago and now I find out I’m in stage 3B Kidney failure! To say the least I feel like the rest of you guys I guess I’m in a fight of my lifetime and I have so many questions and I feel like I have no answers. I hope you guys for considering As part of your group. I may be more of a listener than a talker because I just lost my daughter to a tragic car accident five months ago and I am in such bad shape and still grieving lots. Belinda also known as Lala

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5 Replies
MAS_Nurse profile image
MAS_Nurse

Hello and welcome BlindaSu, I am so sorry to hear your sad news about your daughter, what a tragedy for you and now this blow too.

You are very welcome to this community, it is a very informed one and doesn't matter how much you contribute, you will always be welcome.

Ask questions of your health professionals too, that is what they are there for, so that they can help you regain or maintain as good as quality of life that you can have.

Keep posting on here and ask your questions,

Best wishes,

MAS Nurse & Moderator.

Bassetmommer profile image
Bassetmommer

HI BlindaSu,

So sorry for you loss. I cannot imagine going through all that you are. So here's a virtual hug ((((hug)))).

Stage 3 CKD is not actually failure. The good news is that people can live many years with that stage with no issues. When you are up to it, let's talk about diet and the things you can do to maintain that stage.

We are here for you.

Ange17 profile image
Ange17

So sorry to hear of your loss! Prayers to you and your entire family.

I lost a kidney 4 years ago to hydronephrosis, I also have CKD, but remember its just a label they put on you because of your numbers. My gfr ranges from 55-65 different on every test. It's not failure and my doctors( yes, I have 2 nephrologist because I have a hard time trusting doctors after my misdiagnosis with the hydronephrosis) told me if I watch my protein levels(kidneys work harder with high protein intake) and diet I can totally make it the rest of my life without dialysis and I am almost 50 years old! I've pretty much gone vegetarian but still eat chicken or meat once in awhile. Plant protein is way easier on kidneys. We are born with more then enough kidney function. We can totally make it with just one kidney. Take care of yourself, meditate, exercise, and watch your diet. You will be just fine:) Get advice from a good dietician to help if needed. And best advice I can give you...dont worry. One of my husbands clients is 85 and she lost a kidney in a car accident when she was 15 years old. When I first had my kidney out and got the CKD diagnosis she told me her entire life all she did was worry, worry, worry. If she could go back in time she wishes she could tell herself not too:)

Susiegood profile image
Susiegood

I'm so sorry to hear of your sad loss. How devastating for you and your family, I pray for comfort and strength for you and the family. Also for this awful news. Keep fighting.

Hi everyone, thanks for your kind support I was just blown away when I saw all the support that this community offers. I see my nephrologist July 1 and I am going to request a dietitian and hopefully get some questions answer 😊 I will keep up the good fight like all of you guys! You are a inspiration as a group and again thank you.

Lala

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