I had a major stroke a year ago with two lots of brain surgery and months in hospital.
Does anyone fear another stroke? I just feel that a second stroke would see me no longer or a fear of being in a vegetative state.
It is not really a fair questions to ask of the medical fraternity as they would be unable to answer it.
A horrible question to ask so does one really pace oneself or live for the day? It is rather complicated by fibromyalgia ?
I think initially we all do. It takes time for us to realize we can be okay and not every symptom we experience means another stroke. Try to distract yourself . I read books, go for walks and meet with friends when I can. I always stay positive as I don't want to be a Debbie Downer to anyone. Good intentions, Cindy in NJ
Stroke survivors are usually aware that a stroke can happen at any time, but to quote a line from David Carradine's character in the television series Kung Fu; "...when did worrying about tomorrow ever change anything?..." I've been told in the past that I've been close to death, but I'm still here. I aim to lead a normal life, other than I can no longer drive and I modify exercise.
Don't think you are alone. I'm sure many of us have felt/do feel worried.
But try no to let it stop you in your tracks totally.
Enjoy the day, do a few things each day, visit friends, bake, laugh, listen to music, whatever you enjoy.
I'm a cfs sufferer too....and had rare form of stroke in 2014. Haven't let it stop me from travelling....indeed I have actively pursued this since.....travelled alone to China, India, south Africa, Iceland, Russia etc since.
Nothing any of us can do about our mortality.....at least we have been given a kick start to get out there and make the most of it ☺
I had surgery on my neck to help prevent blood clots my comsultant said i shouldnt have another stroke and for sanity sake i have tobelieve him and try to live every day to the full asvwevarecaware we dont know what is round the corner. Live every day to the full and try every opportunity and try not to worry about what might never happen. All the best for the future. Love from
another survivor
Are you in statins? Any side effects?
For me, it's more of the day to day, legacy from stroke. I don't really think about another one. I've got fibro too x
I saw a post by Richard Gere on facebook and it was very relevant to me "none of us is getting out of here alive so eat delicious food , enjoy yourself, swim in the ocean" (~I can't remember the rest) but I am following his advice the best I can. I had a serious stroke 8 years ago , followed by a minor one (is there such a thing ?) then I smashed the neck of my femur and had a metal hip repair , it hurts a lot , nerve pains to my foot. Yes I'm scared, yes I'm fed up and frustrated. But I had a lovely piece of carrot cake this weekend . that'll show them !
love to you Catherine x Annlynne
Hi Catherine pace yourself enjoy and embrace the good days🤗Don't be to hard on yourself and worrying doesn't help as I do it constantly!think positive thoughts you are getting monitored for the stroke and are on meditation I presume?sending u a 🤗 hug xxx
Thank you. I am quite selfish and I am lucky to be under the John Radliffe, Swindon any my GP!!!. And yes, I am on an enormous amount of medication and just take them. I know that I should ask about them but my GP is already in a rush
Ive had 2 and am still here ,no good doing your head in about it, only causes problems,good luck for the future.
Hi I just joined. I had a TIA almost a month ago, still waiting for cat scan, terrified and waiting for another one, so many strange physical and mental sensations and this anxiety's not helping.. I'm finding it really difficult to deal with.
I had a major stroke 14 month ago. I still have a problem with my emotions. memory .word finding . understanding .reading . gets me down but I'm alive . I have come from been paralized to walking with a walking stick . so in 14 month that not bad . but I still fear the worst of it happing again 🤗
Thanks Deborah, you're done so well, I'm really glad for that. I'm just starting on thar road, went for the CAT scan today, apparently it takes 7 - 10 days to get the results to the stroke cons. In the meantime I have to sort whether these daily symptoms are after effects or are they side effects from the clopidigrel, one of these medics will have to assist with a solution, they're debilitating and holding me back from being more positive. If I knew one way or they other, I could deal better with the 'now'. For 'tomorrow', I fear the worst too. I suppose that's something we have to learn to live with. I'm used to life long chronic health conditions but nothing like this! All the best for all of us x
Me too, I had one 10 month ago and I feel the same as you. I think most people will think the same. Not one day do I not think about it, lets just hope it turns out ok for us all.
Keith.
Please go to my profile and read my past post listed there: “my thoughts on this awful disease” this is it in a nutshell. I try to post it for you kiki1952 but it wouldn’t let me, as I think you have to be on that board. So just say yes, then you can remove yourself later, 🤔
Have had my second when having blood taken in doctors surgery,so right place--never the right time. now known as2stroke . Hope you have better luck.
TRYPANOPHOBIA--FEAR VOF NEEDELES
Hi I have just joined tonight, I had a stroke 10 month ago and I have thought of nothing else since. I can't sleep or eat, I just worry all the time.
Keith.
Try to relax, you getting yourself worked up and stressed out only causes you to become more worked up and stressed out which isn’t going to help the situation.
Try to make a mantra for yourself that you truly believe so you can say this out loud to calm yourself when becoming stressed.
Such as: I live, therefore I am. I am stronger than I know as this stroke punched me but it couldn’t get me because my body is too strong and I kicked that stroke’s ass.
You can do this you are stronger than you know. Breathe and continue on, you are strong, you are worthwhile. Life goes on and you will be living on to enjoy it! Cindy
Thank's again Cindy.
Keith.
I was just looking at another post that reminded me when you write things down, it’s easier to let them go. I use to do this and it did make me feel better. Give it a try it may help, you’ve got nothing to lose and it just may work, please let me know how it goes. You don’t say if the stroke left you with any limitations, did it, and if so how are you coping with them?
Have an awesome day, i know it will get better, Cindy
The stroke just left me with this depression, at first I could not speak but it only lasted a few hours. But my head feels the same as it did on the day it happened, but it has not left me with anything else. But I just feel terrible every day, it never lifts. I am from Newcastle upon Tyne, Northeast England. I am 65 and retired.
Thank's Keith.
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