A More Emphatic and Convincing Video From Dr. Mischley

[pdpatient]

Here is the video from May 2023

youtu.be/LdpfNnnAzKI?si=QzH...(Not working as expected?)

[park_bear]

I appreciate Dr. M. That said, more emphatic and convincing of what?

[John_morris71 in reply to park_bear]

I will be impressed the day they can halt or reverse PD. Until then the misery is prolonged due to delay. That being said, I can respect the effort that goes into helping patients.

[DroppinIn in reply to John_morris71]

Does it count if a person can halt or reverse PD while being on dopamine supplement?

[pdpatient in reply to DroppinIn]

DroppinIn My perspective is that if anything can help me live normally without much dependency on others and without the dread of waking up every morning and not knowing how the day is going to turn out is a godsend.

I don't care about a cure What I do care about is the reliability of something that works day after day without exception like my diabetes medication which has made miraculous strides over the past decade.

[DroppinIn in reply to pdpatient]

Yeah, I totally agree. And that is achievable, although it takes more effort than most people want to put into it. And I believe the PWP needs to start early enough to halt the progression and even reverse it (somewhat).

[pdpatient in reply to park_bear]

park_bear She gives powerful hope that one may be able to live usefully and productively a full life with the right choices that one can make with the information that she has gathered. Her Vitamin C example was a good illustration of how anecdotal evidence can be used to fast track the help and relief that Parkinson's patients need.

Her presentation was quite strong and inspiring and she went so far as to challenge us to live up to a 100 years. This is like a motivational speech and I found it quite a bit jingoistic. 🤣😇

[DevonLangdale]

Thanks for posting this. Interesting to learn what successful people do even if there isn't a scientific explanation.

[kevowpd]

There are fundamental challenges associated with her data collection methodology. Challenges that ought to be clear to any PWP that looks at her survey form and reads the anecdotes about the huge day-to-day swings in the scores people achieve. She is doing her best with the resources available and she seems sincere but I think treating her recommendations as gospel is unwise.