From Dr. Mischley:

[faridaro]

The Parkinson’s Foundation is hosting a 2-part series this week to tackle food and PD. I’ll cover the science / ingredients on Thur and on Fri a dietician will help you put it into practice. (Free, will be recorded)

parkinson.org/events/2020/N...

[pdpatient]

Thank you so much for the information, faridaro.

[faridaro in reply to pdpatient]

You are welcome! Hope it helps.

[MBAnderson]

thank you, thank you

[faridaro in reply to MBAnderson]

You are very welcome !

[Mapleshade58]

Thanks so much! I like Dr. Mischley. This sounds great.

[Vik38]

Am in France but would love to catch up on a recording of it. Could you please put a link to the recorder version afterwards?

Thanks

[faridaro in reply to Vik38]

If I get a hold of this event's recording will definitely post it. I myself won't be able to attend half of this talk today due to a scheduled appointment

[laglag]

Thanks!

[MBAnderson]

What do Dr. Laurie Mishley, Dr. Constantini, Dr. Jeamonod, and Dr. Dale Bredeson all have in common??

6 years of documented, verifiable success ignored by mainstream neurology.

Here is a 20 minute video, not worth watching because there's nothing to learn from it except if you're interested in the language mainstream neurology uses to ignore progress.

The director of the Alzheimer's research for the Mayo Clinic saying, among other things, unless you have a deficiency, supplements are a waste of money. Try telling that to the thousands of people that have benefited from Dr. Costantini's work.

When asked what progress has been made in the last 30 years, he says only that they're better at diagnosing it now. 20 minutes of pablum from the Mayo Clinic.

youtube.com/watch?v=shhkKfE...(Not working as expected?)

[bookish in reply to MBAnderson]

Thank you for posting and for your superb, informative and thought-provoking profile.

I survived about 7 minutes of Mayo before becoming too depressed and angry to continue so went to look for Dr Bredeson instead. What a breath of fresh air.

I recently read that autoimmune disorders are (or may be)

'a consequence of the body's inability to convert toxins into harmless by-products fast enough'

which really spoke to me.

We have Parkinson's, essential tremor, Pernicious Anaemia, B12D, Graves' and Hashimoto's Thyroiditis, Raynauds, Fibromyalgia, Small Fibre Neuropathy... in the family. My mother was diagnosed with Alzheimer's, but was chemical reactive and worsened from migraines to word finding difficulties, confusion, absences, TIAs then disappeared into years of dementia as she was prescribed exogenous hormones, given anaesthesia (local, general, dental), investigations and scans, and more and more medication.

Now I have multiple health issues of my own and have been trying for some years to make sense of it, I am convinced that she had an underlying gluten disorder causing the chronic low level inflammation, together with genetic predisposition for poor toxin and oestrogen clearance. No-one looked for high homocysteine, no-one looked to see why she reacted so badly to HRT (or why I did the same with the pill). I have COMT causing slow neurotransmitter and oestrogen metabolism, also MTHFR and other vulnerabilities, plus a glutathione absent gene. Functionally, I know that my Phase 2 liver detoxification is abysmal.

Gluathione absence seems to be one of the main indicators of likely disease, is strongly linked to multiple chemical sensitivity and I see now is also implicated in Parkinson's. Is it something that you have had any success with? I see that you are using NAC. I am currently using Kirkman's detox aid which has alpha ketoglutaric acid as an alternative to NAC, plus reduced l-glutathione. The difference in my function and mood is vast, since I stopped the 15 years of medication and started to think for myself. I am gluten, dairy and other likely inflammatory foods free, using EFT (tapping), exercising my vagus nerve, toxin intake reduced as low as possible, Wim Hof breathing, a raft of carefully chosen supplements (after some testing). Chalk and cheese. Long way to go, lots of damage accumulated, but so wish that I had known and started earlier so that Mum could have had a better chance.

My best wishes to you.

[MBAnderson in reply to bookish]

Don't we all wish, 'if I only knew then (my early twenties) what I know now' I might not have PD.

I fully subscribe to the Bredeson/Michley theory that the roof is leaking from 36 holes and all of them have to be found and patched. People often ask on this forum, "I have XYZ symptom. What can I take for it? While there are some symptoms that have a monotherapy like sleep aids for sleep or constipation aids, I think most symptoms can only be dealt with by patching as many of the holes as we can.

Sounds like you've done well getting on top of your health issues.

I agree that gluten is probably more harmful than most of us realize. I know a young man with multiple sclerosis whose condition/symptoms are not detectable which he attributes to being totally gluten free.

I have not noticed the difference from my taking an NAC, but that's because I take so much stuff. My most recent addition, which I've added since Covid 19, is quercetin.

I believe there is something to the cold exposure strengthening our immune system that Wim Hof advocates, but in my old age I become a cold-weather weenie.

Best to you

[bookish in reply to MBAnderson]

You are so right. I'm working on my existing '36 holes', but am scared of heights and keep putting my foot through the tiles. I like the Wim Hof breathing (only my first week, after a post on here) but with a dodgy thyroid am permanently cold so also a cold-weather weenie.

The gluten conversation is Marmite - so many people won't try it, or try it and think it isn't helping because they get worse eating bought GF which isn't healthy, still full of additives and rubbish, and often contains more of things that people might also be reactive to or begin to be reactive to. I did the same - went traditional GF for reflux, just to see if it helped (as the medication didn't) and the acne from which I had suffered for 40 years just vanished, giving me a clue that maybe it wasn't a good thing for me to be eating! But I started getting more GI issues, especially correlating to corn, so cut it out and did some testing, finding that I can't tolerate corn, oats, barley, rice...so now don't eat any grains at all. (Not easy as I was addicted to bread, like Mum!)

Good choice re. Quercetin - an essential for me as I have histamine/mast cell issues and it works a treat. Dr Seheult and Micki Rose are both in favour, re Covid (and NAC). But I try not to take more than I need as it is a methyl donor and although my requirement overall is moderate, I very much need the methylcobalamin and methytetrahydrofolate. All down to balance again.

Also just started Volvic (bottled water) as it is one of the 2 higher silica waters suggested for improvement of aluminium effects. (Possibly reduces oral absorption, enhances excretion and may mitigate adverse effects). Silica is also used as a mycotoxin binder but can't imagine that the water will have any effect there.

Thanks again and best to you too.

[MBAnderson in reply to MBAnderson]

This article duplicates Dr. Bredeson's work and refutes the 'no progress' position of Mayo Clinic. (This article refers to 35 holes in the roof instead of 36.)

"The personalized therapeutic program includes genetics, an extensive blood panel, medical history and lifestyle data to evaluate relevant metabolic risk factors and nutrient levels associated with cognitive health. “Target laboratory levels differ from standard laboratory ranges as the goal is to reach optimized levels for cognitive health”,

neurosciencenews.com/alzhei...

[Rhyothemis]

I can't attend.

Can someone ask about why frozen vegetables provide no benefit ( associated with increase in symptoms, but the association was not statistically significant)? There's also apparently no benefit from frozen fruit (and that's mostly how I get fruit).

Is it okay to eat canned food if a non-BPA liner is used?

Do canned or frozen vegetables and fruits have more fungal toxins?

Has she studied the effects of whole grains other than than oats?

What does she think about supplementing with tributyrin?

[faridaro in reply to Rhyothemis]

Good questions, however I may not be able to ask them today as I have a scheduled appointment this afternoon and unfortunately will have to miss second half of the presentation. I can try to ask the dietitian who will be conducting the event tomorrow if she will allow questions.

[Rhyothemis in reply to faridaro]

Thank you

[laglag in reply to faridaro]

Will this be available to watch afterwards, in the next week or two?

[laglag in reply to faridaro]

The presentation about Diet & Nutrition?

[faridaro in reply to laglag]

The Parkinson's Foundation website states:

"The presentations will be recorded and available on our website."

[laglag in reply to faridaro]

Ok, thanks. I've only been on Zoom once so I'm trying to get on now. Thanks for your quick reply.

[faridaro in reply to Rhyothemis]

Rhyothemis,

Just wanted to let you know that yesterday I submitted first 3 of your questions to Dr. Mischley however had to rush to an appointment and not sure if they were answered. Hopefully when they post the recording of the presentation it may provide some answers.

[Rhyothemis in reply to faridaro]

Thank you!

[PDGal4]

I watched this and I always learn a lot from Dr. Mischley. I can't answer all Rhyothemis's questions and Dr. Mischley is the first to admit she doesn't have all the answers either. She was surprised at the canned/frozen vegetable results and had a colleague suggest it could be that fruits and vegetables grown with more pesticides are the ones canned and frozen. The cans themselves were also brought up as the reason.

She also has no idea why pasta causes faster progression since bread does not (neutral, neither slows nor speeds) and one theory is it could be the sauces on pasta--dairy, meat, canned, etc. In her research she has not found a gluten free diet to make a difference but she has patients she sees in clinic who report feeling much better gluten free, the three biggest symptoms alleviated are heartburn, hemorrhoids, and fatigue.

More at her website livinghealthywithparkinsons...

It's my understanding recording will be up at the website in about a week.

[faridaro in reply to PDGal4]

Thank you for your thoughts on the presentation, I had to rush to an appointment and missed over half of the session, however will be looking forward to the recording.

[PDGal4]

And thank you for posting and making us aware of the presentation. I plan to watch part II today. I am watching Mischley's PD School, although I am woefully behind, and she said it's difficult to find nutritionists for PD--between the protein/CL issues, the nutritional needs, etc. Today's presentation is by a nutritionist.

[faridaro in reply to PDGal4]

I am planning on watching today's session too and also falling behind on the Dr. Mischley's PD school (haven't gotten to her last class yet) so you are not alone. Hope today's session will give us some good information!

[PDGal4 in reply to faridaro]

I found today's session not very helpful, for me. Yesterday's was superb.

[faridaro]

The same here, however I missed second half of yesterday's session and have to wait for its recording to be posted.