Started bleeding with BMs again.

[Raerae2781]

Good afternoon,

I was diagnosed with Ulcerative colitis at the start of May 2024 via colonoscopy. Start of June , I had a bad flare up where I had lots of blood and diarrhea ( up to 12 times day) worse cramps ever. Finding mesalasine tablets in poo. Got admitted 3 days in hospital for dehydration and IV steroids. Quickly returning my condition around and discharged on prednisolone tablets. Which I've been advised to slowly taper . Starting 30mg and reducing by 5 mg every week. I'm now on 20 mg due to drop to 15 mg tomorrow but noticed a fair bit of blood with last bowel movement. I've got no follow up appointment so far with IBD team and it's 5 pm on Friday.

What to do? Do I carry on decreasing or stay on 20 mg over the weekend. Scared I may go back to square one.

[Helloit]

Hello Raerae2781 I’m sorry I don’t have any information that would help you but I hope that you’re okay 🤍

[Be12345]

Hi, have you got a number for your IBD nurse? If you haven't search for IBD nurse and select your hospital...evrey hospital has them. They have been very helpful for me! They will be able to advise on what you need to do regards meds and they can also prescribe if they think you may need something else. They will have all your medical reports and can also speak with your consultant.

Good luck, hope you feel better soon!

[Inxs11]

I had same problem,I was on 60mg when I was diagnosed with colitis,you have to carry on until tapering is finished,the capsules didn't work for me and the doctor put me on the same medication but in granule form,I've been on these for 6 years and they are much better,I still have bleeding now and then but most of the time I've been fine,ask your gastro doctor could you try try Dr faulks mezzanine granules.

[Raerae2781]

Thanks for the replies. I'm going to stay on the 20 mg until I get further medical advice. Good advice I had no idea you could get granules.