vedolizimub

[Bucket13]

Hi, I started the vedolizimub iV infusions in hospital approx a month ago for UC. So far I have had 2 infusions so hopefully only 1 more infusion to go then I can start to inject.

My only worry is my white blood count is low and the nurses said if it continues to stop any lower than 3 they wil delay treatment so I really hope this won’t happen. I had my blood test today so hopefully the results will be with me mid week.

Otherwise I feel fine and the vedolizimub is working for my ulcerative colitis

Any other similar stories?

[Hidden]

I've been on vedolizumab IV infusions since March 2020 my markers are down from 4000 to 20. Prof Seb has told me these infusions are for life now, they have never mentioned injections. My IBD journey started over 40 years ago, non of the medications have worked as well as the biological infusions that are only every 8 weeks. Although my inflammation has reduced, I still have bowel issues ie overflow diarrhoea from constipation, I'm going for a sigmoidoscopy on Friday as laxido hasn't cleared the blockage.

[Bucket13 in reply to Hidden]

I hope the sigmoidoscopy gives you the answers you are looking for. It’s exhausting isn’t it

[Jameshuh]

Been on Vedo for nearly 12 mths seems to work I have to say. I didn't have issues with BT but I did have severe diarrhea after infusion no. 3 the hospital says it was a coincidental gastro after that cleared up I had minor issues but now it seems to have settled. Not a fan of the infusions but the results seem to be good.

[Bucket13 in reply to Jameshuh]

That’s good to know. Happy they found something for you that works