Haemorrhagic colitis: Has anyone else... - Crohn's and Colit...

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Haemorrhagic colitis

Anastasia17 profile image
2 Replies

Has anyone else been diagnosed with Haemorrhagic colitis, or heard about haemorrhagic colitis. This was diagnosed following a colonoscopy where they found 3 sites x 3cms and treated it with argon cautherisation under general anaesthetic (although they keep telling me it was not ga). I also have endometriosis, more than likely on the bowels. This colonoscopy was organised urgently following acute rectal bleeding. My rectal bleeding occurred always at the time of periods and ovulation, hence the reason why I am convinced that it is linked to endometriosis, possibly the endo have damaged the bowels. Although I have been repeatedly assured that it is not. The very urgent colonoscopy was organised 2 months post laparoscopy to treat endometriosis. The very urgent referral for rectal bleeding was delayed for 2 months by the GP (to obtain their commission from the CCG) and an additional 6 months from the local hospital that cancelled the referral altogether, so 8 months delay. I was left to reorganise the referral to the London hospital, to the endometriosis specialist who then picked it up and organised the colonoscopy. Due to acute and painful reactions to foods, I removed all the foods that make me ill, such as: gluten, dairy, soya, chocolate, caffeine, apples, brown rice, tomato puree, all dry beans (baked beans/borlotti, etc), butternut squash. It works for me. I can only tolerate a bit of milk in my decaff coffee. Ive tried a yoghurt recently, but I felt sick and nearly faint, so I won't be renewing this experience any time soon. The food removal does control the pain a lot, but not completely. If you have heard of haemorrhagic colitis, I would be interested to hear your views. Thanks.

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SuzyQ67 profile image
SuzyQ67

I looked this up on well known hospital sites here in the US & this condition is related to E-coli infection which comes from tainted foods, animals & other individuals infected with the E-coli. Get on the net & look at university hospital websites.

Anastasia17 profile image
Anastasia17 in reply toSuzyQ67

Thank you for your reply. However, it doesn't match up with the fact that the rectal bleeding was always in line with my cycle, ie, during periods and ovulation. If it had been an e-coli infection, it would have occurred at any time, surely. Also, why would it react to high oestrogenic food such as soya and seeds? gluten and dairy? This is what does not make sense to me.

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