Infusions

[webbs8]

Hi everyone and hope you are managing to keep busy in a positive and fun way! I am going to have my 1st infusion next week for my chrons and wonder if anyone has experience of this and how they feel after. Also does anyone else have awlful taste in their mouth in the mornings?

[Hidden]

Hi, what kind of infusion are you going to have? Is it Remicade?

[webbs8 in reply to Hidden]

Its infliximab

[Hidden in reply to webbs8]

Ok, so Remicade is the commercial name of Infliximab. My son has did not experience any side effects. We know three people with Chrohns who is on Infliximab for several year and are in remission, one has used it for ten years with excellent results. I believe this drug is considered the go to drug for Chrohn in a top down approach. I wish you all the best of luck and results. The effect should be almost immediately I have been told. The infusions takes a bit of time and I believe you get a tylenol and benadryl before the infusion in case of any pain/allergic reaction, but this is precautionary. The nurses will keep an eye on you all the time and monitor you, so don't worry too much. Let me know how it goes.

[webbs8 in reply to Hidden]

Thanks very much for all that info and all sounds very positive. Ah thanks I wont! I just been for bloods to check all ok for Friday 👍 x

[webbs8 in reply to webbs8]

Hi louise just home from 1st infusion and all fine so will be interested if my flare up starts calming down 🤞and back in 2 weeks. Hope all ok with you x

[Eixor57]

I take Inflectra which is a generic or similar to Remicade. My doc just has me take some allergy pill, and 1000 mg of Tylenol before I leave the house to go for my infusion. I take Claritin 24 hour.