Hey guys! I have Crohn’s disease (recently diagnosed) , have just started on Humira injections last month and have almost finished my dosing of Prednisone. However I’ve just woken up today and have some severe abdominal pain, one of the worse I’ve felt. Is that something I should wait out or not really sure what to do. Is this something I just have to deal with or should I go to the hospital? I’d call my nurse/doctor but it’s a holiday today and they aren’t in the office.
Thanks in advance, I really appreciate everyone’s help and support
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RedFlamingo27
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If pain that bad, go to hospital, always better to be safe than sorry. The last time I had that sort of pain with my Crohn's it turned out to be an infected swollen Gall Bladder, no one grumbled at A+E that I had gone.
I do not consider this sort of visit a waste of time. If it is a real problem, then you cost the NHS less, the sooner it is dicovered, wait until something is worse always costs them more. The very fact you have the diagnosis you do, but are early in the knowledge state (I have 30 years behind me and therefore a fair idea what the various pains mean - including I ate too much chocolate!!) most sensible nurses and doctors would understand if it turned out to be something unthreatening, better safe than sorry.
The waste of time people tend to be very silly things, but so few people do First Aid training these days. I have a bee in my bonnet about basic First Aid being taught at school, I know that the Guides and Scouts do this, but not that many children go to these.
My Stepdaughter has Crohn’s and is on humira too. Yes you need to go to the ER hospital and be checked out especially if it is still persistent bad pain and you are still home with this. My poor stepdaughter has been admitted 4 times to the hospital because of her Crohn’s and weakened immune system do to the humira. She was in grade school when she was diagnosed (before I was on the seen) she is 30yrs old now. What is your age of diagnosis if you don’t mind me asking? Please get to the hospital. Crohn’s is a nasty disease. I have ulcerative colitis not as bad as Crohn’s.
I’m 21 and was diagnosed 4 months ago. So still trying to figure everything out! I ended up going and they said it’s either gastritis or a bad flare up. They’re treating me for the gastritis before the flare because they’d have to up my prednisone again if it’s a flare and I’m almost weaned off it and the higher doses of prednisone really mess me up, my head gets spinny and loopy and I can’t concentrate on anything. Thanks for the comment , it’s always nice to be reminded you aren’t the only one 💕
Your reaction to steroids very common, when I am on large doses wander round with lists of reminders. At one piont I did manage to work part time (for 15 years) and when was on the steroids used to double check things like letters or reports before I sent them out, as I discovered I was thinking so quickly (from the buzz) that I would miss parts of sentences as had thought them so quickly and had only thought I had typed them!!! My pet hate was when at the end of the withdrawing process used to get a form of depression, I presume the mind coming to terms with the loss of the buzz, firtst time it happened thought I was going nuts, GP told me it was normal for some people, wish they had warned me. Glad you went to be checked out, all the best
You are too young to be having to go through all of this. Younger and younger people are getting sick. This proves there is a something in our foods, water, air that is causing a chronic autoimmune inflammatory response leading to all these diseases. My grandparents with the exception of paternal grandpa all lived well into late 80’s and paternal grandma into her late 90’s. My parents lived into to 80 and 84. Unfortunately both my grandmothers had dementia and my mom had Alzheimer’s. My dad smoked one cigarette 🚬too many before quitting that he died from long cancer. Sorry I rambled here. I need to go. 😊💕🦋
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