Calprotectin level : Hi can anyone tell... - Crohn's and Colit...

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Calprotectin level

Ricycle profile image
7 Replies

Hi can anyone tell me whether the calprotectin level is always raised in someone with IBD or is it only during a flair? X

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Ricycle profile image
Ricycle
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7 Replies
honda7 profile image
honda7

Hi, it's only raised during a flare up. In my experience I don't like this test because when I have had it done it has only been slightly elevated but now I have had an MRI which shows I have bowel strictures so for this reason I don't feel it gives a true picture of what's going on.

Ricycle profile image
Ricycle in reply tohonda7

Thank you for your reply honda7. I have only had problems once so far which lasted for a month, at the back end of that my calprotectin level was 965. I haven't had any symptoms for the last three months so I'm not expecting it to be raised but as a precaution I am being passed over to the IBD nurses care. X

Frankiealice profile image
Frankiealice

I'd like know this too!

Ricycle profile image
Ricycle in reply toFrankiealice

Hi Frankiealice, I have been very lucky in that I have only had 1 episode. At that time my calprotectin level was 965, I have since retested and my level was normal at less than 20

Frankiealice profile image
Frankiealice in reply toRicycle

Ooh ok the only reason I wanted to know is that i have suspected IBD but being pushed away and told it's ibs only. Doc has agreed to stool test but at the min my symptoms are mild and quiet so wasn't sure whether to wait for active flare up or if i can do test now. I don't want to do it now if it's not going to give a true result of my concerns and then doc refuses referral.

Ricycle profile image
Ricycle in reply toFrankiealice

Are you having regular flares? I don't think it's worth getting the test if everything is quiet. Would it be possible for you to get the kit from your gp and keep hold of it until you have a flare up?

Frankiealice profile image
Frankiealice in reply toRicycle

I go through stages where I have a month where I have mild symptoms and this is me currently. I've got the kit so may wait then if that's best. When I get a flare up they are constant for a month or so

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