Colitis

[Caskey]

I was diagnosed with ulcerative colitis 18 months ago and have been on several different medications, none of which seems to be working for me so it has been suggested by my Consultant that I go on a drug called Simponi (gulimumab). Has anybody experienced this as it is a self injecting drug which sounds quite daunting.

[CONSTANTGUTACHE]

i have been on lots of different things and to be honest i feel that its all trial and error, some things work for some and not others, its the same as the diets some can eat wheat some cannot. I have tried Prendisalone suppositories and they worked for two years then stopped, i am now on Prendisalone tablets and they are easing the blood a bit, the buscaban is ace for the stomach cramp, but you cant beat kolanticon gel if you can get it. I have just been given Mercaptopurine 100mg tablets apparently my body is fighting its self so these are supposed to work. Good luck with your colitis think you have to own it and find a way that works for you, my spelling is shocking but you should get the gist.

[Hidden]

Dear Caskey,

So sorry to hear you have joined our ranks .

There are many of us and you aren't alone.

Although I have never been on Simponi, I believe it is a cousin to the other drugs in the "Biologic family".

I've had UC for 30 + years, so there isn't much I haven't been on.

I received Remicade infusions for 8 years for RA, & the beautiful bonus was 8 years of remission of my UC.

Unfortunately, it stopped working for my colitis 1&1/2 years ago. I am now back to square 1.

These autoimmune diseases are such a challenge I can only do 1 day at a time or I'd completely lose my mind!

All the best to you, & keep us posted. Hugs!

[Hidden]

Thank you StewartDS.

Always willing to go the natural way...I believe most of us would.

I live in the USA , will the drink still be called Volvic ?

Will they know what silicon rich water is?

[Hidden]

Thank you so very much!