Explanations and Update Day 1

Thank you all so much for your welcome and supportive comments :)

'Burstcouch' mentioned making sure my Doc knows about this and April 61 mentioned interest in any results re lung capacity. I am seeing my consultant next Monday so will mention it to him - I know there will be no problem as it can only benefit me, but best to make it 'official' I guess.

As regards lung 'capacity' that is already huge but useless, my lungs already being oversized and floppy, stretched and hanging below the lower rib line - with the diaphragm also floppy and 'dropped' compared to normal. This makes the in - out breathing harder and more 'conscious' than it should be. The oxygen (02) problem is due to destruction of my alveoli - this cannot be reversed. Air trapping too is a major part of COPD - we get the air in, but as we breathe out the small airways tend to collapse, trapping air and causing 'hyperinflation' - the cause of those over stretched floppy lungs. This will be my biggest enemy as the further / faster I walk , the more air trapping until I am breathing from very little capacity left at the top of the lung. Much of this 'deflates' in the hour or so folowing exercise. Added to that we have muscle loss and wasting - with the loss of type 2? fibres - I think the perceived wisdom is that even when muscle strength is gained, we still have muscle endurance problems.

So, why do it you might ask. Well there are great benefits. A couple of weeks inactivity for COPDers = 16% loss of muscle mass - and the less muscle the poorer oxygen use and fewer 'mitochondria' for energy production. So all exercise is good. Walking is considered the best exercise of all for COPD and finally - I have read research papers stating that serious regular exercise can extend our (copd'ers) life by an average of 7 years. As we have no cure and much shortened lifespan that makes it the best medicine of all :) Mostly - this is not a certainty - I just might build enough more muscle and increased capillary mass to be able to manage without 02 again for a while at least :) That would really be something!

So - today I stuck with my 1 mile 'shuffle'. I am afraid it took 1 hour 40 minutes of real hard slog, not my best time - but I will improve - you will see! Best wishes Parvati :) currently 'deflating'! PS sorry for long explanation!


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9 Replies

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  • What incredible stamina, amazing..........

  • Well done... You are you one brave cookie!

  • You're amazing ! Thank you for explaining too.

  • It is really helpful to have the explanation so thank you for spending the time to explain; and well done with what you are achieving, truly amazing!

  • What a story! You are very determined and I shall think of you when Iam on my next run. It is a real challenge and you sound up for it. This is an incredibly supportive community on here. I hope you learn from people on here as I have learnt already from you! :)

  • Well done, you are clearly a very determined person and your story is inspiring.

    Good luck with your journey, keep us up to date with your progress.

  • Well done for completing your mile, 1 hour 40 mins is still a start and you've now got a benchmark to improve on. You really are in inspiration to all of us out there... and remember, the tortoise still ran his race and beat the hare didn't he? ;)

    Good luck!

  • You are Amazing -thanks for the explanation; you have a real incentive to give it your best shot. I hope that the positive feedback will help encourage you. I hope that your appointment goes well! All the best and keep us posted

  • I think you truly are inspirational Parvati....... I have severe asthma and have found that running has definately helped with my lung strength...... I'm really looking forward to watching your progress!!

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