Pulmonary Hypertension

[puddy68]

Hi Everyone, and thank you for accepting me into your group. I don't actually have COPD [although I am yet to go through a myriad of tests, so it might be likely], as I have scarring on my lungs because of sarcoidosis. I was just wondering if anyone on this forum also has Pulmonary Hypertension? I've been diagnosed with this, and made the mistake of researching on google. I'm scared witless. Any information/positive prognosis stories would really help! Thank you so much.

[jackdup]

if you post on this group you may get more replies as there are far more members there than on this forum.

healthunlocked.com/asthmalu...

[WalkingFootballerUk]

Hi puddy68,

Your history sounds similar to mine. About 25 years ago I had chest pains leading me to get hospital check-pleurisy was diagnosed. Then few years later breathing declined so I went back only discover historic damage to lungs from sarcoidosis. Following this I was diagnosed with COPD.

My lung function stats had declined without apparent cause so they tested for pulmonary hypertension because COPD can affect quality or amount of blood reaching heart (don’t quote me on this, but it was my understanding). They did heart MRI, echocardiogram and CT scan. Fortunately my heart seems ok for now.

My understanding is that treatment for pulmonary hypertension depends upon the cause but it is treatable. I just find you have to be on ‘their’ case until things get sorted out, ringing secretaries etc to find information or book appointments-don’t wait for them to call you. It may be different in Australia.

Good luck.

WalkingFootballerUk