New to group: Hi everyone. I am new here. Happy... - COPD Friends

COPD Friends

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Frani1998 profile image
9 Replies

Hi everyone. I am new here. Happy to find a support group. I was diagnosed with COPD 5 yrs. ago. I am currently taking 2 different medications and use oxygen at night. Trying to learn how to live with this and. What to expect down the road.

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Frani1998 profile image
Frani1998
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9 Replies
Peteybob profile image
Peteybob

Hello Frani and welcome to the group!!

Frani1998 profile image
Frani1998 in reply to Peteybob

Thank you.

Hi, I am new to the group as well! I received my diagnosis 1 year ago! I have some struggles since then! What are some of the things you struggle with? I also am on 2 meds and Ox at night!

Frani1998 profile image
Frani1998 in reply to

I am not struggling with much right now. It takes me longer to do the housework. I take lots of breaks. Walking any long distance is really hard. On an average day the COPD doesn't get in my way. Things were a lot harder before I started the mess I am now on. What are you struggling with?

in reply to Frani1998

I use to walk 3 to 6 miles a day, I am lucky to walk around the block now! I have a very hard time in the shower, I would assume because of the steam! I can no longer stand the heat at all, I have a fan on me at all times! I ache all over in my rib cage area and I also bloat terrible at times, which is very hard to deal with, to the point I have to wear elastic waist pants only! And, of course, the exhaustion! I keep pushing on, I have to!

barbs47 profile image
barbs47

Hi Frani welcome to the site. I'm sure you will find lots of help and support here.

Frani1998 profile image
Frani1998 in reply to barbs47

Thank you.

I am also new to this site. I was diagnosed in 2001, but know I have had it for years before that. I was in denial. I do not take any medication, but do have oxygen at night and portable if I want through the day. I only use it for a couple of hours at night, once in a while during day. I take it with me wherever I go, however. The steroids I was taking made me cough so bad I thought I'd pass out. I quit. I'm doing better. How do you cope? Well, one day at a time. I refuse to have a bad day. Every day I wake up breathing is a good day. We do when we can, we rest when we must and we hope for the best. Breathe easy my friend.

ken2pen profile image
ken2pen

I have the same problem trying to live with this and trying to find how far I can go with this please help thanks

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