worried again

[Lillyjay10]

i have the worry again that something else is going on in my body.

last year i got a positive fit test and had colonoscopy and was diagnosed with diverculitis.

i have had beelding now for 3years at least with no break in between.

When i last saw my gp for more anyibiotics he said my symptoms do not sound like my diagnosis and people with diverculitis tend to get a break in between bleeding and its not usually every time they go to the toilet

Mine is everytime without fail for the past 3years

And now its changed theres alot more blood and it dose not look the same at all

So im back to worrying again amd not sure if to see my gp as an emergency or to wait for my appointment in 6 weeks time (the quickest i could get)

i have added a picture of how my stool is now its very very different to previous

not sure if this os notmal for diverculitus or not as iv never been like this

[GCCA-Survivor Administrator]

Hi Lillyhay 10,

I hate you're having to worry again. You say you're going to see your GP in six weeks. Is this the same GP that said your symptoms do not sound like the diagnosis? When you were diagnosed last year and were given some antibiotics, did you notice a change then? It sounds like the changed happened at that point?

I'm thinking you may want to try a second opinion if that's possible. That may not be a realistic thing to do given six weeks was the quickest appointment you could get. What you are experiencing definitely needs to get a good solid answer.

We hope you find a solution soon. Please keep us up to speed on what you’re finding out. Maybe someone on this site has some input from a similar experience.

Tom

[Lillyjay10 in reply to GCCA-Survivor]

no nothing has ever changed every bm has been bloody just the past fee days the blood has turned darker and alot more

Hopefully it will be the same gp but living in a small town we get whoever is available that day so no set gp

I have had 4 lots of antibiotics now and still no change

Luckily i dont have any other symptoms as i read stomach pain can come with the diagnosis for me its just all this blood

Atleast half of my bm are just mucus blood like the picture the res all have this blood mixed in

[GCCA-Survivor Administrator in reply to Lillyjay10]

So, even with the antibiotics, no change. So, we know that's not it. Need to find that answer somewhere. Blood is something that needs an answer. Is there an on-line virtual doctor visit you can take advantage of since you are in a small town? Some how, it needs to be correctly diagnosed. I really hate you have to deal with this.

[Lillyjay10 in reply to GCCA-Survivor]

i don't think we have any virtual visits, we can book an emergency same day appointment lf its seen as an emergency thats how i have had antibiotics other times without waiting for an appointment

[Dance22]

it certainly needs looking at very quickly, do you have any screening services nearby, not sure where you’re from ! but if you have this give the a call, our NHS have been absolutely amazing with my progress, keep on at them and take care.

[Lillyjay10 in reply to Dance22]

im in scotland the nhs fast tracked me for a colonoscopy last year but im now wondering maybe something higher up in mg bowel that couldnt be seen by colonoscopy maybe im needing more tests just to rule things out and hopefully find the main cause for this of its not the diverculitis when i had my colonoscopy last year the consultant said it was very mild diverculitis and didnt look to be inflamed at the time wich is another thing playing on my mind as at the time i was having alot of bleeding

[Dance22]

the colonoscopy should have seen anything going on ! maybe more tests! Bloods scans and MRI every avenue should be looked at, keep at them and find your screening services they will be happy to help, keep on posting and all the best to you 👌

[Lillyjay10 in reply to Dance22]

thank you and all the best to u 2 in your journey i have just been reading your post i hope everything works out well for you

[Dance22]

thank you and you too, I’m so lucky the moved so fast, have a lovely day and keep positive 💪🤞x

[Lillyjay10]

just a quick update i called gp surgery today and was told im not an emergency because i know i have diverculitis and to wait for my appointment. Im going to call back tomorrow and hope for a different receptionist

[Dance22 in reply to Lillyjay10]

phone your screening services ask for a test kit to put your mind at rest, explain your response from the doctors receptionist it’s not there place to say your not an emergency, good luck keep on pestering 🤞🤞

[Dance22 in reply to Lillyjay10]

hi hope you’re getting results from your GP !! I’ve got an MRI this Saturday this is hopefully to see if they got all the cancer cells 🤞it’s only two weeks today I had my operation so it’s very good going 👌you take care another beautiful day here in Yorkshire ☀️☀️

[Lillyjay10 in reply to Dance22]

oh fingers crossed for you i have a go appointment today unfortunately its over the phone as we are stuck in the house because my kids have caught hand foot and mouth disease x

[Lillyjay10 in reply to Dance22]

just dropping by to wish you good luck for your MRI today hope everything comes back well for you

[Dance22 in reply to Lillyjay10]

hi it all went well results should be in this week, I’ve received an appointment for 15th may ! so it’s not been rushed like all my other appointments scans ect , so I’m hopeful it’s going as planned 🤞🤞hope you’re doing ok and getting somewhere 👌👌

[Dance22 in reply to Lillyjay10]

hi there just an update on my results! got a phone call yesterday from hospital to say my histology results from my operation are clear of cancer cells! so will be put on a 5 year plan, that’s 3 monthly check ups for the first 12 months, scans & MRI every 3 months, so I’m very optimistic about my health 👌👌💯💯

[Schnoodle2017 in reply to Dance22]

congratulations!!!!!! That is brilliant news! I’m so pleased to hear it. The worst is over. They’ll just be watching you for five years.

[Dance22 in reply to Schnoodle2017]

thank you it’s a brilliant result!to say I only started this journey early February 💯💯👌👌

[Lillyjay10 in reply to Dance22]

so happy to be reading this

[Dance22 in reply to Lillyjay10]

thank you I’m so pleased with the results, and thank you for your support! everyone on this group are amazing 🤩 hope you’re doing ok 👌

[Dance22]

it’s a pain not to have a face to face, but at least you’ve getting somewhere, hopefully get you some tests done, hope your little ones get better soon 🤞🤞x

[Lillyjay10]

I have just spoken to my GP he has referred me back to GI and in the mean time gave me antibiotics as a precaution incase it is from the diverculitis but not seeming likely he has requested further investigation and im in to get bloods taken as soon as the household is free from hand foot and mouth

[Lillyjay10]

ok just another update or questions as such

I have a lump i have just found in my bellybutton

Could it be a hernia? Could this be the cause of so much blood in my BM

[Lillyjay10]

i have an update i saw a gp face to face today she marched to the office and demanded bloods be taken before the week is out so they can send an urgent referal to GI they are chevking bloods for Full blood count, kidney function, liver, bone? And 2 different inflamation ones

So im getting somewhere