sweating

[tetlybitter]

hi im 69 my name is bob i have neuroendocrine and 3 tumours on liver from this. at present i waiting for biopsy on my liver see what i have there then once that sorted be on chemo . But im sweating so much bed sheets wet every night cant sleep with wife now she has to wear a wet suit any one else get this much sweating thanks

[whatever65]

Sorry no advice but real good to see someone with a sense of humor...more power to your elbow.

[Gcart]

Hi i am the same neurodndocrine tumour. Removed 10 years ago but still treated for carcinoid syndrome. I am in the south west and have a meeting with others. Do you know of the NET foundation. They can help you possibliy.

[tetlybitter in reply to Gcart]

my surgeon say wont take it out put me on palliative chemo but i have secondry on liver 3 tumour so that might be why im not on chemo yet wait for a octreotide scan

[Gcart in reply to tetlybitter]

Yes octroetide scan is good. Not sure you should be on chemo. I have liver tumours also. If you key in NET foundation on computer you may get some more info that will be relevant to you. I have octroetide injections monthly which keep them in check for me , maybe they might help you. You will find groups of people in your location that may be able to help you further . I am treated at the Royal Free hospital in London. NET centre of the U.K.

[tetlybitter in reply to Gcart]

since last time on here still no chemo but got see a professor steward on this frtday think i might be on something diff