Just diagnosed with colon cancer - Colon Cancer Conn...

Colon Cancer Connected
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Just diagnosed with colon cancer

Hi all, I have just been told I have signs of cancer in my colon picked up in a CT scan for liver lesions. They now suspect the liver to be secondary. I'm heartbroken as I'm only 36 and I have a 7 year old son who I just can't leave cos he's my world. I just don't know what to expect now as I haven't been told what stage etc my cancer is at. Another weird thing is my liver isn't damaged at all and the tumour marker is low for my liver so I don't understand how it can be cancer. Has anyone else been diagnosed with this and how did you feel?

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Goo morning Aimee

So sad to hear your news and rare at 36.

Take heart , the doctors will do amazing things for you . 25 years ago the results were terrible , today they have so much more to help you. The chemotherapy ( folfox) is tolerable and deadly to ademocarcenomas . You have our prayers and a son who will give all the determination to rid yourself of this .

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Thankyou for your lovely response. They think the cancer has spread to my liver and possibly my lungs. They are having an MDT meeting on Tuesday and then Wednesday I am in to see what my treatment plan is. I will battle through this, and cancer will not beat me. I am going to start an alkaline diet and do what I can to help myself.

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🙏

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So sorry to know about your diagnosis at such a young age. I know how devastating it is to you and family. 3 weeks ago, my husband had also been diagnosed with colon cancer stage 4. Our life has been turned down. We are still in shock and are trying to get information about possible treatment for him

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Sorry to hear your sad news :( it just makes you numb doesn't it! We will fight this tho xx

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Hello, how are you doing? Have you started your treatment? My husband is still waiting to see a consultant for a treatment plan. It is nerve wracking but have to remain positive and strong.

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Hi poppy68. I’ve just had my round 2 of IV chemo then I have 2 weeks of tablets. It’s hard going tho. I ended up in hospital for a week with an infection after my 1st IV chemo. How is your husband getting on now? Xx

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Hello Aimee, Sorry to know that you were unwell after 1st chemo. My husband started his first round from this Monday, he has side effects of nausea,rash on his neck and insomnia. We have been praying that chemo will work .hope you get better soon.

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Hi Aimee, I'm so sorry to hear this. Unfortunately, colon cancer has been increasing in younger ages. You are not alone in this and I am so glad you reached out for support here.

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Cure your own cancer website described how CBD and THC fight cancer. I wish you all the best , don't give up hope and keep an open mind about treatment. NaturalNews.com is a good site and also Mercola.

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Dear Aimee.

Like you, I've been just diagnosed with bowel (and possibly rectal) cancer so I know what you must be going through.

I think the most awful thing is not knowing the full prognosis and outcome, but I assure you that you will receive Gold Star treatment whatever and the best possible care to help get you through it.

Oncology has come on massively in recent years and I wish you the very best for a speedy and full recovery.

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Thankyou xx

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Hi there, new to this forum and after reading your post I'm hoping your having the treatment you need and things will improve for you xxxx

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Hi! How are you getting on with your treatment? Xx

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Hi guys I have had many tests done which were all negative. Faecal occult blood , faecal calprotectin and coeliac blood test. Yet I'm still constipated and passing curly stools which are not pencil thin sometimes the stools float. I will always have a bowel movement in the morning. Then i will need to go again. I have been referred to the gastro even though my gp thinks I have IBS.

My symptoms are

Bowel movement every morning around 6am

Then another bowel movement an hour later maybe

Then for the rest of the day I feel the urge to go and no stools come out just watery discharge.

No stomach pains

Don't feel bloated

I am belching a lot

Finally gp told me I had dermatitis around my anus area and gave me some cream to help with burning pain ive been having.

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Hi there. Sorry to hear you’re going through this. I had no bowel cancer symptoms and I still don’t really. Mine has spread to my liver and that’s how they found the bowel coz I was getting pain in my side so had a scan. I would definitely push for a colonoscopy or a scan from the doctors xx

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Yes I'm booked to see a gastro soon. My stools float quite a lot and and curly shaped aswell. Hopefully the colonoscopy or a scan can be helpful in ruling out any serious medical conditions

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Hi Aimee - hope you are well? It’s a scary time but they can fix this pretty well now - I had radiation /chemo iliostomy for 15months then more chemo. Reversal nearly a year ago and been clear ever since - I took lots supplements to help me stay healthy and keep working. It’s a hard journey but well worth it. Things change - you change but it’s not all bad - good luck

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Hi JWarren, thanks for your positive response. That’s good news for you 💪 I have been told I’m incurable as my liver is full of secondary rumours and they won’t do surgery and my chemo treatment is purely for comfort etc. I’m not having it tho, I’m trying alternative treatments alongside my chemo. So fingers crossed 🤞

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Hello Aimee, please don’t give up hope. What you said is very similar to my husband. The consultant said that both sides of his liver are tumors and it’s not operable but chemo might shrink them and might be operable then

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Hi Aimee what alternative therapy are you using? I heard some people with colon cancer use cannabis oil to manage pain and other cancer symptoms, we are considering to give it a try if it is effective. What do you think?

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Hi Poppy68

Yes I’m using cannabis oil alongside my chemotherapy. I find it’s great, for helping me to sleep and it totally relaxes my body. If you can get hold of some, I would certainly recommend it. I won’t know until my scan in September if it’s reduced my tumours but I’ve only heard good things from others using it.xx

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Thank you for the quick response. It sounds great.Hope it reduces tumor . We will try it. We saw it at Amazon . Where is the best place to get it?

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Where do you live? You can buy CBD oil in health food shops like Holland and Barrett in the UK xx

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Yes we also live in the Uk. Thank you

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No problem. How’s your hubby getting on? Has he been ok on his chemo? Xx

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Hello , Husband started 1st chemo from 2July, had some side effects, nearly went to A&E because of temperature of 37.5c,but in the end choosing not to go, we waited for the next day, luckily, temperature returned to normal .he will start 2nd round from coming Monday,how are you getting on ?

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I’m on day 7 now of round 2. I don’t feel too bad but I’m just so tired and weak. It just totally zaps you! I’ve heard each round is harder. We just need to stay strong! We will power through this 💪 where about in the UK are you? X

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Hi, good to know that you are one round ahead so we can share some experience. Paul didn’t like steroid which gives him insomnia, he is thinking not to take the full proscription of it next round. We live in Liverpool,where are you?

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Yes defo, I can give you tips for the next round. I think my pins and needles lasted a little longer this round too. I am from Liverpool too. In Allerton. Are you under the Royal? Xx

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Hi that’s nice surprise to know you are also from the same area. Such a small world!😀Paul is a patient of Clatterbridge.

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Paul’s chemo drugs are folfiri and 5fu. He has KRAS mutation so he can’t have Erbitux. What’s yours?

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Ah ok, my oncologist is based at Clattterbridge however he comes to the royal for clinic and they do a clatterbridge clinic for chemo which is better for me thankfully. I have Oxaliplatin on IV and the tablets are capecitabine. A lot of others on forums seem to be on folfiri and 5fu tho. Xx

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Sounds like the chemo drugs are different, I am a bit surprised as I thought the chemo treatments are standard. Maybe at some point we can arrange for a coffee somewhere and have a chat if both are fit.

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Hi Aimee

I had Oxaliplatin on IV and capecitabine. The course finished in March.

I had a lot of side effects from both drugs, and the Oxyplatin had to be reduced.

I think it was partly because I had chemo for breast cancer 14 years ago (unrelated to the bowel cancer) and it had weakened my system, and partly because it is a tough regimen.

My bowel cancer was stage 4, because it had punched a way through my colon wall, then stomach wall, then diaphragm and was clinging to my lung. A third of my lung and some ribs were removed and I had an ileostomy which was reversed a few months ago.

So far there is no evidence of further spread.

I think that the regimen you are having, and I had, is maybe given if there is colon cancer with lung involvement.

Ever since the original surgery in April of last year, I have taken a daily multivitamin and mineral supplement. I checked first with the surgeon and Oncologist and they were fine about it. I believe it helped to prop up my system. Magnesium frequently dropped below unacceptable levels.

Anyway, you might find this list of side effects useful chemocare.com/chemotherapy/...

Good luck

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With regards to the steroid, the docs at A&E when I had to go think that may have been causing my stomach cramps. I only took it once a day this round just in case xx

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Doctors said the side effects are accumulative, so we have to see what happens

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Poppy68, have you heard anything from Aimee1982, since the posts from 5 months ago?

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Hello tessko , a few days ago I got a message from Aimee 1982’s ex colleague saying that she had sadly passed away a couple weeks ago .

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Oh, thank you, so much for responding. I'm so very sad to hear this. She was so young and I know she hated to "leave" her son. I sort of suspected something was up when she "disappeared" after a couple of posts, one of which did not sound too good. I appreciate your taking the time to respond. Also, I think that was kind of her ex-colleague to let you know.

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Yes I was also very shocked and saddened by the news. She was young and determined to give a fight for her son....Life is unpredictable, enjoy every day when we can.

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So Sad to know she didn't make it..

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I'm so sorry to read this , but these days the treatments are amazing , stay strong darling , thinking of you xxxxxxx

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Hi Aimee and Poppy68. Bit late on joining this post. I was diagnosed with stage 4 bowel cancer in August 2016. Like Aimee I had severe pains in my right hand side from just below ribs up to my shoulder. Had chest x-ray followed by ultrasound which showed up liver lesions. Was referred straight to hospital for further investigation. Immediately suspected colon cancer and had a CT scan which was inconclusive followed by colonoscopy which found a tumour in my sigmoid colon. I was told this was inoperable and incurable but should be manageable with chemo. So I have fortnightly palliative chemo. I started on FOLFIRI (irinotecan plus 5fu - the 5fu is delivered by infusion pump over 2 days). This worked well for 18 months but then I developed a bone met on my scalp which was confirmed as one of the colons devil spawn and had a 5 day course of radiotherapy on that. Then I was changed to 2nd line treatment which was FOLFOX (5fu and Oxaliplatin by iv again with the pump for the 5fu). Which is where I am now. Having my 3 monthly scan today so should find out if it's working! How are you doing now?

Gill xx

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Hi Gill so sorry to know what you have been through since your diagnosis. From your description, you sound like an amazing fight! what is the result for your latest scan? Hope all is well. My husband’s tumors have shrunk and he has been scheduled to have a operation in January. Have you had any surgery since diagnosis?

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Amazing fighter

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My heart goes out to you darling keep on fighting and enjoying your family

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Prayers for you Aimee. Don’t give up, stay strong and determined to fight this horrible disease. God bless xxx

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Hi lovely. I had colonoscopy on Monday and they discovered something they are 99% sure is cancer. I’m now awaiting a ct scan to see how far it’s gone on Sunday- I’ll get results in around another week. Of course I don’t know yet but could be in a similar situation. I can’t answer your question but just want you to know you’re not alone. I have to boys 11 and 13 and no idea how I will tell them. 😞

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I had a colonoscopy 3 years ago and they were 100% sure it was cancer. They took biopsy and had a ct scan that tells them the stage. Mine was stage 3 with indications of invasion to nodes.

The science is so much improved. I had the bit of colon cut off and the colon rejoined . This included cutting away near by tissue with the nodes in . Yes I had stage 3 N2 M0.

That means it was cancer and had progressed to the outer wall of the colon. It had spread to 5 nodes too.

After 6 weeks I started folfox with oxaliplatin. I had three months of the chemotherapy.

In April it will be 3 years since the operation. Clear so far . 🙏

You are absolutely right to confront this ASAP and get the medical experts in action. 30 years ago , my chances would have been 25%. Today they are 70%. Take the expert advice , it works and our prayers too. God bless M

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