UPDATE: UPDATE- So I saw my Podiatrist... - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

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UPDATE

Memabe profile image
10 Replies

UPDATE- So I saw my Podiatrist today and he is stumped as to what is going on with my feet. So he is making some referrals to a bigger hospital where they may have some answers. I already have AFOs and he is getting those re evaluated. Now I have read about people stating about the bumbs under their skin is this part of CMT. I have them all over not just in my arms and legs but my back as well and painful to touch.

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Memabe profile image
Memabe
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seasider18 profile image
seasider18

My wife's cousin is a retired podiatrist, he had his own practise. He said that he had never had a patient with CMT.

I used to go for podiatry at a university where students treated you under supervision. Their teacher commented 'What funny feet you have, can I bring my students round to see them' but CMT was never mentioned.

cmt_exercise profile image
cmt_exercise

"bumbs under their skin"?

If they are on your back, this is unlikely to be connected with CMT.

Memabe profile image
Memabe in reply to cmt_exercise

They are on my arms legs ECT like if you rub my arm you can feel them

cmt_exercise profile image
cmt_exercise in reply to Memabe

What type of CMT do you have?

Memabe profile image
Memabe in reply to cmt_exercise

Not diagnosed yet but by my genetics probably CMTtype 2e but need to find some to look at my genetics report as me

cmt_exercise profile image
cmt_exercise in reply to Memabe

That doesn't add up. A genetic analysis should give you a definitive answer whether you have CMT or not, it shouldn't be a "maybe"...

Memabe profile image
Memabe in reply to cmt_exercise

Hi it's my genetics report off of Prometheus off my 23 and me DNA so not doc ran so that what I interpreted from my genetics report but not sure if I'm reading right that's why I need a doc to look at it my mom had CMT.

Thel profile image
Thel

Bumps under the skin has nothing to do with CMT.

Patricia2015 profile image
Patricia2015

I have piezogenic papels on the side of my heels, they are swollen, red and painful. Do you mean that by bumps? They are not associated with CMT however are associated by Ehlers Danlos f.e.

Memabe profile image
Memabe

I have been asked as bout E.D but I dont have the loose joints but do have most everything else. I do have a new doc now not by choice they moved me from family practice to internal medicine.

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