CLL patient advocate and journalist, Andrew Sc... - CLL Support

CLL Support

23,340 members40,049 posts

CLL patient advocate and journalist, Andrew Schorr shares his story with CLL patient Dr Brian Koffman from the other side of the lens.

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin
1 Reply

A Personal Perspective on CLL and Myelofibrosis Progress

patientpower.info/video/a-p...

We have all watched and benefitted from the video broadcasts of Andrew Schorr CLL patient journalist interviewing those connected with CLL. patientpower.info/health-to...

Here is an interesting interview with Andrew by Dr Brian Koffman, family practitioner and CLL patient. Andrew describes his CLL journey over the past 16 years and how he is winning his fight with myelofibrosis..

“We learn from the interviewer turned interviewee about his strategies to navigate his disease. He outlines through his personal story and his decision process, the critical need for getting support from others with the disease, the primacy of expert advice, and the important role of clinical trials in saving his life.”

youtube.com/watch?feature=p...

In Future posts Dr Brian Koffman will share the interview Andrew Schorr did with him at ASH about his ibrutinib trial.

You can read more of Dr Brian Koffman’s story and his many informative posts on his blog at:

Brian Koffman's blog:

bkoffman.blogspot.co.uk

Andrew Schorr’s blog:

blog.patientpower.info

Written by
HAIRBEAR_UK profile image
HAIRBEAR_UK
Founder Admin
To view profiles and participate in discussions please or .
Read more about...
1 Reply
jangreen profile image
jangreen

Hi I have watch a number of these vidoes and have found everyone of them very informative and interesting. I also asked to go to a specialist and was put on a trial (FCR +M). I was very excited that this guy has been ok for a decade. Its more than what I had hoped for. So I'm now very optimistic. Best wishes.

Not what you're looking for?

You may also like...

Urgent Message from Dr. Brian Koffman: Stop the spread of COVID-19!

Urgent Message from Dr. Brian Koffman: Stop the spread of COVID-19! Give your family and friends...
bkoffman profile image
CLL CURE Hero

What questions do you want Andrew Schorr of Patient Power to ask CLL world experts at the International Workshop on CLL?

Andrew Schorr recently posted this request on the ACOR CLL list, which I've repeated here for your...
AussieNeil profile image
Partner

Dr. Brian Koffman reports on the 6 CLL-focused oral presentations from Day 1.

Highlights from the First Day of ASH 2021! Dr. Brian Koffman reports on the 6 CLL-focused oral...
bkoffman profile image
CLL CURE Hero

Introducing Chris Dwyer (Patient Power Video)

Not that Chris/CLLCanada needs any introduction to anyone that has visited our community more than...
AussieNeil profile image
Partner

Urgent Message from Dr. Brian Koffman: Give your family and friends the best gift this holiday season:

Urgent Message from Dr. Brian Koffman! Give your family and friends the best gift this holiday...
bkoffman profile image
CLL CURE Hero

Moderation team

See all
AussieNeil profile image
AussieNeilAdministrator
CLLerinOz profile image
CLLerinOzAdministrator
Newdawn profile image
NewdawnAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.