update: hi it’s been a while since I posted. I... - CLL Support

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Hilo13 profile image
22 Replies

hi it’s been a while since I posted. I left the site cause my CLL transformed into non Hodgkin’s lymphoma presenting as anaplastic stage four . It was a stressful time and after having palliative chemo which finished in august I presented with a complete response to the treatment obviously this is not a cure but I’m grateful that I am at the moment feeling ok . I hope everyone on here is as well as possible and wanted to thank those who kept in touch in the past. Have a good day x

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Hilo13
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22 Replies
Jm954 profile image
Jm954Administrator

I can't tell you how happy it has made me to see your post.

Cures are complete responses that go on and on and on and ...... I'm hoping that happens for you xx

Jackie

Hilo13 profile image
Hilo13 in reply toJm954

Thankyou one day at a time 😘

Newdawn profile image
NewdawnAdministrator

This is so good to hear Hilo and thanks for updating us. Your experience will reassure so many others.

Take care and long may your remission continue.

Newdawn

Hilo13 profile image
Hilo13 in reply toNewdawn

Thankyou for your reply and your support

Stewie_1968 profile image
Stewie_1968

Great news and your feeling ok Stewie

Thursday45 profile image
Thursday45

Good to hear that your treatment is going well. Look after yourself

Poodle2 profile image
Poodle2

Chris! Super happy to read your update! Such good news, one day at a time, absolutely. Enjoy life ❤️Petra

Dyzzie22 profile image
Dyzzie22

Hello, it’s great to hear your treatment is having a positive impact and that you are feeling ok at the moment. Late last year I too was told that I had Non-Hodgkin Lyphoma rather than CLL, it was like having a whole new diagnosis to come to terms with. In my case it is low grade so still watch and wait but not looking forward to chemo at age 70, but you have given me hope. However after a horrible spring last year with chest infections I couldn’t get rid of, I have now also been diagnosed with Bronchiotasis, which complicates things a little.

MovingForward4423 profile image
MovingForward4423

Well done, you!

Potplant profile image
Potplant

Good news - it's great to hear that you're feeling 'okay' now. Thanks for sharing with us and stay well. Linda ❤️

Milla15 profile image
Milla15

Long may it continue! xx

JEEA profile image
JEEA

Oh Hilo, how good to hear this. You have been through SO much in all this time. Enjoy this time of "complete response" . Life has much to offer. Eleanor

Fran57 profile image
Fran57

Oh, great to hear from you, and with such positive news! That’s cheered up my day!

Take care,

Fran 😉

TruthJunkie profile image
TruthJunkie

Glad to see that you are back, Hilo13, and best wishes for your continuing the “good fight.” I can understand why you needed some quiet time.

New-bee-cell profile image
New-bee-cell

Wonderful news! 🥰

Horatio2 profile image
Horatio2

This is great news.

Pearlpink profile image
Pearlpink

so lovely to hear from you! Fantastic news! ☀️

Sanders9 profile image
Sanders9

So pleased treatment is working well for you. Long may it continue

Danie50 profile image
Danie50

omg !! I wondered ! But you never know ! I'm glad you're doing ok ! Take one day one step one breathe at a time ! Enjoy the small things ! 🤗🧡🤎

NaturalWaze profile image
NaturalWaze

Such great news!! May it continue and continue!

Mystic75 profile image
Mystic75

Thank you for updating the forum with such great news.

I can imagine how stressful this must have been for you and so happy you had a complete response. ❤️

D.xo

Flipperfeet profile image
Flipperfeet

❤️

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