hi it’s been a while since I posted. I left the site cause my CLL transformed into non Hodgkin’s lymphoma presenting as anaplastic stage four . It was a stressful time and after having palliative chemo which finished in august I presented with a complete response to the treatment obviously this is not a cure but I’m grateful that I am at the moment feeling ok . I hope everyone on here is as well as possible and wanted to thank those who kept in touch in the past. Have a good day x
update: hi it’s been a while since I posted. I... - CLL Support
update



I can't tell you how happy it has made me to see your post.
Cures are complete responses that go on and on and on and ...... I'm hoping that happens for you xx
Jackie

This is so good to hear Hilo and thanks for updating us. Your experience will reassure so many others.
Take care and long may your remission continue.
Newdawn
Great news and your feeling ok Stewie
Good to hear that your treatment is going well. Look after yourself
Chris! Super happy to read your update! Such good news, one day at a time, absolutely. Enjoy life ❤️Petra
Hello, it’s great to hear your treatment is having a positive impact and that you are feeling ok at the moment. Late last year I too was told that I had Non-Hodgkin Lyphoma rather than CLL, it was like having a whole new diagnosis to come to terms with. In my case it is low grade so still watch and wait but not looking forward to chemo at age 70, but you have given me hope. However after a horrible spring last year with chest infections I couldn’t get rid of, I have now also been diagnosed with Bronchiotasis, which complicates things a little.
Well done, you!
Good news - it's great to hear that you're feeling 'okay' now. Thanks for sharing with us and stay well. Linda ❤️
Long may it continue! xx
Oh Hilo, how good to hear this. You have been through SO much in all this time. Enjoy this time of "complete response" . Life has much to offer. Eleanor
Oh, great to hear from you, and with such positive news! That’s cheered up my day!
Take care,
Fran 😉
Glad to see that you are back, Hilo13, and best wishes for your continuing the “good fight.” I can understand why you needed some quiet time.
Wonderful news! 🥰
This is great news.
so lovely to hear from you! Fantastic news! ☀️
So pleased treatment is working well for you. Long may it continue
omg !! I wondered ! But you never know ! I'm glad you're doing ok ! Take one day one step one breathe at a time ! Enjoy the small things ! 🤗🧡🤎
Such great news!! May it continue and continue!
Thank you for updating the forum with such great news.
I can imagine how stressful this must have been for you and so happy you had a complete response. ❤️
D.xo