Update.

[Jacksc06]

Hi all. Been a bit quiet recently as I have had some issues. I had what I thought was heartburn a couple of weeks ago along with shortness of breath. After tests anECG and chest x-ray it is probable that I had a silent heart attack. Being monitored by the hospital. I have been exhausted recently so had a consultation with my haematologist. I have had a call today from my macmillan nurse and I am to have four rounds of Rituximab starting on Monday as my bloods counts are not good. CT scan also booked. Not looking forward to this but needs must. Love and strength to all.

[nvp815]

Hi Jack,

I am so sorry to hear about all you have been through. The heart attack must have come as quite a shock. Wishing you the very best of luck with your infusion on Monday.

Warm regards,

Nan

[Jacksc06 in reply to nvp815]

Thank you. Indeed a bolt out of the blue. Been feeling unwell for some time but at least something is being done now.

[Stavrou1 in reply to nvp815]

That's awful , and good something is being done . Wish you well.

[Jacksc06 in reply to Stavrou1]

Thank you

[Ghounds]

Oh I am sorry to hear this, sending you best wishes and hope you feel better very soon.

[Jacksc06 in reply to Ghounds]

Thank you.

[Pacificview]

You certainly are on quite the bumpy road for the time being. I pray you get through this as quickly as possible. May God give you all the strength you need to do so. May he also bring healing quickly to your body. May good times return in abundance in your life.That's my prayer for you!

[Jacksc06 in reply to Pacificview]

Thank you.

[Walkingtall62]

oh Jack, that isnt good news for the moment. Are you still working too? It’s a bit if a tough sea you are on at the moment. Do keep in touch with us all and let us know how you are going. Wishing you all the luck in the world!

[Jacksc06 in reply to Walkingtall62]

Thank you. I'm signed off work at present and can't see me going back anytime soon.

[Walkingtall62 in reply to Jacksc06]

Will be thinking of you from Monday onwards. Let us know how it all goes. Hope you have help at home to for a while. All the best

[Jacksc06 in reply to Walkingtall62]

Thanks. I will be coping at home on my own but friends have offered to help.

[Walkingtall62 in reply to Jacksc06]

so please let them help. Have little lists of shopping from the shops you like etc. If they offer they mean it. So nice for you. Take care

[Peggy4]

Hope you’re feeling better soon Jack.

Peggy

[Jacksc06 in reply to Peggy4]

Thank you Peggy.

[Fran57]

So sorry to hear that, but now you will be looked after and can look forward to feeling better soon.

Very best wishes,

Fran 😉

[Jacksc06 in reply to Fran57]

Thanks Fran.

[terryI_uk]

Sorry to hear you're having new problems jacks, hopefully they will be quickly dealt with, God bless, Terry

[Jacksc06 in reply to terryI_uk]

Thank you Terry.

[Mtk1]

So sorry to hear about your heart attack, are they starting you on treatment for that? I too suffered a heart attack last year( angioplasty and 2 stents later and I’m doing good now) we also have a forum on HU from the BHF which you may find useful. I wish you well Jack.

Dave.

[Jacksc06 in reply to Mtk1]

Hi Dave. I am being monitored at present with a view to medication/ procedure. First port of call is the Rituximab infusions.

[Bubnojay]

I am sorry to hear this Jacks and of course wishing you well. I have followed your journey from when you joined the community and was hoping that things were getting better for you. This must have been quite a blow, but as you say at least now you know what was causing those symptoms. Stay as strong as you always have, and if you feel up to it keep us posted.

As always best wishes

Bub

Bubnojay

Sorry for the mistype which I have now corrected.

[Jacksc06 in reply to Bubnojay]

Thanks Bub. Appreciated.

[bennevisplace]

Madame Fate deals another one, eh Jack. I feel for you mate. At least the medics have got this in their sights, poised to act as necessary.

I hope that R treatment does the trick.

Best wishes.

[Jacksc06 in reply to bennevisplace]

Thank you.

[Newdawn Administrator]

Sorry to hear this Jacks. You’ve been under such emotional stress lately that I wouldn’t be surprised if it isn’t implicated.

Good luck with the R and hope life brightens for you soon. I’m sure you’re now reviewing whether you can continue with your job.

Best wishes,

Newdawn

[Jacksc06 in reply to Newdawn]

Thank you. Will be looking at it in the future. I need to deal with this first and see how it pans out.

[kitchengardener2]

Oh so sorry that you are struggling right now. Hopefully things will improve and that the infusions help your blood counts. Stay strong, God bless

[Jacksc06 in reply to kitchengardener2]

Thank you.

[kimiD]

That is not the news you want to hear. I'm sorry you're dealing with this Jacks. I hope you begin to feel better soon and thank you for keeping us updated.

[Jacksc06 in reply to kimiD]

Many thanks.

[CLLCalifornia-USA]

Best of luck for things to get better soon.🙏Sally

[Jacksc06 in reply to CLLCalifornia-USA]

Thanks Sally.

[Name-1]

Good lack,dear Jack!🍀🍀🍀

[Jacksc06 in reply to Name-1]

Thanks olga.

[Analeese]

Sorry to hear you are having a rough time. It's good there is a plan in place going forward to get you well again,

[Jacksc06 in reply to Analeese]

Thank you. Yes things have been put in place quite quickly.

[CaptRon1976]

sorry to hear Jacks, as has been said, your heart can strengthen over time if not too much damage done. You deserve for them to look at your heart to see if a stent could be placed which could restore healthy blood flow to the part of your heart muscle that might be compromised. It could make a world of difference. Heart medication could help but carries fatigue side effects whilst not solving blood flow issue.

Best of luck, press the docs if you must.

Ron

[Jacksc06 in reply to CaptRon1976]

Thanks Ron.

[DoriZett]

Keeping good thoughts for you.

[Jacksc06 in reply to DoriZett]

Thank you.

[AmCLL]

Hi Jacks, you are now in good hands and being looked after. Though your journey has been tough, you will soon come out a winner. Wishing you the very best of care and a cheerful return to normal.

AmCLL

[Jacksc06 in reply to AmCLL]

Many thanks.

[AnneHill]

Sorry you have yet another illness, Jack. Take care and accept any offers of help. People like helping others. Anne. uk

[Jacksc06 in reply to AnneHill]

Thank you Anne.

[ksteinberglewis]

I’ll keep you in my thoughts and prayers. Stay strong

[Jacksc06 in reply to ksteinberglewis]

Thank you.

[BobbyFour]

I am sorry to hear the news, but glad to hear you are being looked after.

[Jacksc06 in reply to BobbyFour]

Many thanks.

[Beattiem-UK]

So sorry to hear about this. How frightening it must have been for you. I'm glad you're being taken care of now and that the medics can get you back on track before too long.

Beattie

[Jacksc06 in reply to Beattiem-UK]

Thank you Beattie.

[scarletnoir]

Sorry to hear that... hope the rituximab works out fine and also any treatment which may be given for the heart condition.

[Jacksc06 in reply to scarletnoir]

Thank you..

[CycleWonder]

Jack - Hopefully your R infusions will go smoothly and then your heart issues can be addressed. I will keep you in my thoughts. Please post when you can to let us know how you are doing.

[Jacksc06 in reply to CycleWonder]

Thank you will post when able.

[JerrysGirl3]

Wow! Who would have known....or, who should have known. It must have been frightening getting the diagnosis. I'm glad you at least know and have people watching you and testing. I had a car accident (hit a telephone pole, no people involved thank God) turns out it was either extremely critical low blood sodium caused by ehrlichia tick bite (😳) or I think it was a stroke based on similar symptoms when I had my first one in 2015. Still haven't gotten tests cos doctors office is clueless. Either way, I had sent copies of my labs to ALL of my doctors prior to accident and no one saw a pattern. Count yourself lucky that you not only were "diagnosed" but they are being proactive. It's taking me 5 weeks to get after-hospital check ups!! By the way I'm in the good ole USA 😕

[Jacksc06 in reply to JerrysGirl3]

Indeed life is full of surprises. Best wishes

[noeagaman]

I'm sorry to hear that you have another hurdle to get over Jacks. You have has so many and I know that you must be ready to get back to a good, healthy life.

I am having a CT of my heart tomorrow as I have had some trouble catching my breath even when just bending over to tie my shoe. Going up a flight of stairs really gets to me. My doctor is being extra cautious just in case. She is also sending me to pulmonology.

Get well soon Jacks!

Chris

[mrsjsmith in reply to noeagaman]

Hope tomorrows tests are clear Chris. I am having tests for lung function now. What a bunch of crocks we are.

Jacks I hope you feel better soon. So concerning to have undiagnosed heart issues.

Colette

[noeagaman in reply to mrsjsmith]

Hi Colette, yes we are a bunch of crocks... I hope that your test is clear as well.

Chris

[mrsjsmith in reply to noeagaman]

Thank you Chris. 🤞

[Jacksc06 in reply to mrsjsmith]

Thanks colette.

[Jacksc06 in reply to noeagaman]

Hi Chris. Hope you get some answers from your scan. Yes it's been a long hard road.