Mouth sores: Imbruvica and mouth sores - CLL Support

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Mouth sores

Bjhayes14 profile image
16 Replies

Imbruvica and mouth sores

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Bjhayes14
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16 Replies
Cllcanada profile image
CllcanadaTop Poster CURE Hero

Not uncommon.. do you know what they are? Canker, Thrush, Herpes etc...? In the U.S. patients report so e success with Magic Mouthwash.

Bjhayes14 profile image
Bjhayes14 in reply to Cllcanada

I’ve had the problem since I got the new Imbruvica “pill.” I just found out I can still get the capsule and just received my capsules three days ago. It seems to be better already. The only thing I can see is the change in the inactive ingredients in the pill. Anyway, I hope that’s it.

annmcgowan profile image
annmcgowan in reply to Cllcanada

Hi which mouthwash is successfull?

Ann

W00dfin profile image
W00dfin in reply to annmcgowan

My oncologist prescribed “high tech” mouthwash which was mixed onsite by the pharmacy according to his specifications. It has both healing and numbing properties.

annmcgowan profile image
annmcgowan in reply to W00dfin

Thank you . I see my specialist on Tuesday and will ask him to concider this.

Ann

Wroxham profile image
Wroxham in reply to annmcgowan

Ann

If you are suffering Difflam oral rinse is very good. Usually needs prescription.

Sue

netdoctor.co.uk/medicines/m...

annmcgowan

annmcgowan profile image
annmcgowan in reply to Wroxham

Thank you seeing specialist on Tuesday and have a list of recommendations to run by him. I will add Difflam.

Ann

in reply to annmcgowan

Hi Ann

I use Listerine in the purple bottle and it works fine for mouth ulcers and sores while on Ibrutinib.

Stuart

annmcgowan profile image
annmcgowan in reply to

Thank you I will speak to my specialist on Tuesday and give all recommendations a try.

Ann

Mystic75 profile image
Mystic75

My husband was having mouth sores on ibrutinib and was prescribed Acyclovir, which did the trick. Apparently my husband's mouth sores were due to herpes virus.

annmcgowan profile image
annmcgowan in reply to Mystic75

Thank you. I am going to ask my specialist about swabbing my mouth for bacteria or viruses and discuss mouth washes too.

Ann

Mystic75 profile image
Mystic75 in reply to annmcgowan

My husband was reluctant to add another medicine but was very glad he did it.

annmcgowan profile image
annmcgowan in reply to Mystic75

I know how he feels. You feel overwhelmed with what you are already taking but if it makes life more comfortable I will take it. Thank you once again.

Ann

BeckyLUSA profile image
BeckyLUSA

Funny thing about Ibrutinib, you don’t always get all the side effects in the beginning. They can come and go at any time. I got my first mouth sore about 9 months into Ibrutinib treatment. I had been on Acyclovir the whole time. Had a couple two weeks ago, but they only lasted a couple of days. My specialist prescribed the famous Magic Mouthwash and it worked within a couple of days. As stated above, it is compounded in your local pharmacy, must be kept refrigerated and should be discarded after 2 weeks. Good luck!

BeckyL USA

annmcgowan profile image
annmcgowan

Thank you I will ask my specialist on Tuesday.

Ann

Hoffy profile image
Hoffy

Oregano oil worked for me and others. 1 drop on your tooth brush then rinse slightly before using since it is so strong,

After a week the issues went away when I was on Imbruvica,

Be well,

Hoffy

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