I was admitted into the hospital today for 5 days of DA EPOCH R w Venetoclax for large diffuse large b cell lymphoma, Richter’s Transformation, of my CLL. Still shocked by the diagnosis as I continue to feel pretty good despite the swollen spleen, enlarging lymph modes and fatigue.
It’s been a long day waiting on blood work and doctor’s orders, but my first 24 hour treatment was started at 8:05 pm. I was given premeds for nausea and 100 mgs of prednisone prior which is doing its job. So far no issues. However, I am wide awake and writing this at 1:30 am EST - US. But that’s ok if the only side effect. Venetoclax will be added around day 20 with a quick ramp up but I’m not sure of the duration.
I know this treatment will present challenges as we progress through the cycles, but the doctor thinks because I am relatively healthy other than CLL, I should do well with no major issues. The goal is to get me to CAR-T, but not sure when/if that is supposed to happen.
I’ll update along the way. Please feel free to ask about the treatment or my journey. I hope I can be of help to anyone facing the possibility of Richter’s.
ReneeSusan