Swollen Lymph Nodes: Wondering if anyone else is... - CLL Support

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Swollen Lymph Nodes

StrengthHopeLove profile image
5 Replies

Wondering if anyone else is experiencing this journey: feeling fine, all blood numbers are great, so no treatment at this point although in December of 2021 a lymph node enlarged in my left groin and was excised surgically. Pathology was fine just an unknown infection. Now, a year later I have a tremendous lymph node in my left groin. Again all blood numbers are good, I feel fine, and my CT shows nothing but the enlarged size of the node. The skin around the node is red and spreading. Headed to my PCP tomorrow to rule out Gyn involvement and antibiotics prescribed by my Hematologist have not reduced the node. So weird and so ready to just have this one excised if need be. Also knowing I should be thankful that I am not worse….the enlarged node is such a constant reminder though.

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StrengthHopeLove
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lankisterguy profile image
lankisterguyVolunteer

Hi StrengthHopeLove,

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Len

StrengthHopeLove profile image
StrengthHopeLove in reply tolankisterguy

Thank you!

AussieNeil profile image
AussieNeilPartnerAdministrator

The right to test results depends on the country but I with the mention of PCP, I suspect StrengthHopeLove is in the USA.StrengthHopeLove, if you have this node excised, you will have paid for the resulting pathological examination and report and have the right to those results, so request them and add them to your medical file for later reference.

Neil

StrengthHopeLove profile image
StrengthHopeLove in reply toAussieNeil

Yes, I am in the US and fortunate to have good access and sharing of medical records among my providers. Just anxious to get a decision to excise so I have a potential solution ahead…until the next challenge

StrengthHopeLove profile image
StrengthHopeLove

Yes, absolutely. I feel the same…information is power and (the illusion of) control

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