It’s been a long time since I posted... was a conscious decision to try and get on with things and not think about my CLL (am a big over thinker) but I missed you all so here I am!
Quick recap - I was diagnosed 3 years ago aged 37, stage 0, lymphocyte count 7... since then it’s crept up a little, my white cell count and lymphocyte count are in the 20’s which I am aware is still low for CLL and I feel fine. Tired but that could be the busy job, stressed husband and small children...! Still watch and wait.
However in recent weeks I’ve noticed lumps in my neck which I believe are swollen lymph nodes. They’re not sore at all but are clearly visible.
I’m not due to see my haematologist again until April - do I need to call her and mention these lumps sooner, do you think?
I am a panicker and I am panicking, but my head is telling me this probably doesn’t mean a whole lot in that lumps alone most likely don’t make me ready for treatment yet so probably nothing will change... (self diagnosing much?!?)
Would be grateful for any thoughts from you experienced balanced fabulous people!!! Huge thanks!!
Also apologies as no doubt this has been covered before so sorry for going over old ground...
Best wishes everyone and thanks in advance for reading,