Update on my CLL after 12 months : I've just had... - CLL Support

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Update on my CLL after 12 months

Skyfli profile image
5 Replies

I've just had a blood test and visit with my oncologist, 12 months after my first diagnosis. My CLL was on "watch and wait" as it was very low level and very slow progressing. So after 12 months my blood test results were great and my b cells have crossed below the CLL threshold, back to MBL. Once you've crossed the threshold to CLL the diagnosis remains, so I am still under the oncologist, however this was great news! The oncologist told me to see him again in 12 months, with another blood test. To say that I'm happy with the results is understatement, I am truly elated and I hope that the trend will continue. I was actually expecting the opposite when I walked into his office. The main things I have been doing in the last 12 months is having a good diet of fresh foods. I have also been taking a number of supplements, and doing yoga which I love. Whether or not any of this has influenced my blood test results I can't say. However I'm planning to continue what I'm doing and see what happens in the next 12 months. And I'm still flying too which makes me very happy. 🙂

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Skyfli profile image
Skyfli
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5 Replies
seelel profile image
seelel

Good news!!! Keep up the good diet and exercise - It has its own value on your overall health and well-being and perhaps some extent on your CLL.

There are other genetic factors that determine whether your CLL will remain indolent, progress or become aggressive.

My nearly 14 years experience with CLL sees me untreated and maintaining a nutritious diet and exercise. I also have favourable prognostic markers. So whether it's lifestyle or genetics or a combination of both - I don't know, and probably never will. But if it keeps me indolent for another 14 years, I'll have reached 87 and I'll thank my lucky stars that I was one of the 30% that never need treatment. Anyway, that's my fantasy.........

DisneyMom profile image
DisneyMom

Congrats! That's great news!!!

Carol 🇨🇦

BettinaB profile image
BettinaB

Thank you for sharing your good news. I feel it's very important that those with slow-progressing disease post on the forum too.

WinJ3 profile image
WinJ3

Great for you Skyfli. Keep doing what you’re doing 😃

Win

Mystic75 profile image
Mystic75

That is great news, Skyfli! Hope this trend continues for you indefinitely!

D.

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