Update on my CLL after 12 months : I've just had... - CLL Support

CLL Support

23,335 members40,040 posts

Update on my CLL after 12 months

Skyfli profile image
5 Replies

I've just had a blood test and visit with my oncologist, 12 months after my first diagnosis. My CLL was on "watch and wait" as it was very low level and very slow progressing. So after 12 months my blood test results were great and my b cells have crossed below the CLL threshold, back to MBL. Once you've crossed the threshold to CLL the diagnosis remains, so I am still under the oncologist, however this was great news! The oncologist told me to see him again in 12 months, with another blood test. To say that I'm happy with the results is understatement, I am truly elated and I hope that the trend will continue. I was actually expecting the opposite when I walked into his office. The main things I have been doing in the last 12 months is having a good diet of fresh foods. I have also been taking a number of supplements, and doing yoga which I love. Whether or not any of this has influenced my blood test results I can't say. However I'm planning to continue what I'm doing and see what happens in the next 12 months. And I'm still flying too which makes me very happy. 🙂

Written by
Skyfli profile image
Skyfli
To view profiles and participate in discussions please or .
Read more about...
5 Replies
seelel profile image
seelel

Good news!!! Keep up the good diet and exercise - It has its own value on your overall health and well-being and perhaps some extent on your CLL.

There are other genetic factors that determine whether your CLL will remain indolent, progress or become aggressive.

My nearly 14 years experience with CLL sees me untreated and maintaining a nutritious diet and exercise. I also have favourable prognostic markers. So whether it's lifestyle or genetics or a combination of both - I don't know, and probably never will. But if it keeps me indolent for another 14 years, I'll have reached 87 and I'll thank my lucky stars that I was one of the 30% that never need treatment. Anyway, that's my fantasy.........

DisneyMom profile image
DisneyMom

Congrats! That's great news!!!

Carol 🇨🇦

BettinaB profile image
BettinaB

Thank you for sharing your good news. I feel it's very important that those with slow-progressing disease post on the forum too.

WinJ3 profile image
WinJ3

Great for you Skyfli. Keep doing what you’re doing 😃

Win

Mystic75 profile image
Mystic75

That is great news, Skyfli! Hope this trend continues for you indefinitely!

D.

Not what you're looking for?

You may also like...

Update on my CLL diagnosis

Hello, I was diagnosed with CLL in Oct 2022 and was told I had # CLL/SLL with extensive bone...
tenniselbowz profile image

New diagnosis - MBL or CLL?

Hello again - updated name and avatar. Previously Dogsta. Well, after a strange 3 or 4 weeks I...
Geoff_S profile image

IBRUTINIB - 12 months on

My improvement is truly amazing. My blood tests at 10 months and 12 months on Ibrutinib showed ALL...
Haileybury profile image

Post on behalf of my mom : CLL Diagnosed 2021 , Mutated , Trisomy 12 - W&W for now

Hello everyone, I joined this community , acting as a primary care giver for my Mom . Mom is 71...
gopalansree profile image

Another 12 weeks with CLL

After nine months on venetoclax down to seeing prof every 12 weeks rather than 4. Look at this...
Corin850 profile image

Moderation team

See all
Newdawn profile image
NewdawnAdministrator
AussieNeil profile image
AussieNeilAdministrator
CLLerinOz profile image
CLLerinOzAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.