CLL drugs covered in Ontario: Can anyone direct... - CLL Support

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CLL drugs covered in Ontario

Cave123 profile image
10 Replies

Can anyone direct me to a list, or tell me which first line treatment targeted therapy drugs are covered (paid for or reimbursable)? i.e., Ibrutinib, Venetoclax, etc.

Thanks CAVE

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Cave123
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cllady01 profile image
cllady01Former Volunteer

Here's a link to CancerCare Ontario, Formulary

cancercareontario.ca/en/dru...

Cave123 profile image
Cave123 in reply tocllady01

This is great - thanks so much 👍

halfdiamond profile image
halfdiamond

Your pharmacist would know.

goldstream profile image
goldstream

Check for Ontario in the link provided for each drug cllcanada.org/treatment-acc...

Cave123 profile image
Cave123 in reply togoldstream

thank you very much !

Complicated question for me. I got fcr as first treatment. In hospital drugs were covered. Take home chemo drugs I had to pay for with help from my insurance and the complicated trillium system. At end of treatment I was out of pocket about $6500. I was shocked to find out that chemo is not covered if you take it at home. Trillium is complicated to navigate. Good luck.

Cave123 profile image
Cave123 in reply to

thank you - I hope you are feeling ok - all the best

Curling123 profile image
Curling123

I asked my doc and was told we are covered by OHIP for Ibrutinib and Acalabrutinib, but not yet for Venetoclax.

Cave123 profile image
Cave123 in reply toCurling123

Hi Curling123, Thanks for your response to my question. I'm glad to see that you are doing well with Alacabruitbib. I'm finding it challenging to get detailed information about OHIP coverage. To my understanding, there are restrictions for people under 65 years old, i.e., you can't be mutated IgHV, or you must have del17p, or you've already had FCR and have relapsed or refractory in order to qualify for a BTKi.

Cave123 profile image
Cave123

thanks !

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