Well its been a while since the last time I posted. I wanted to share my experience so far on the Clinical Trial I'm on IB with V. I have been on IB now since October and experienced every side effect you can think of in the beginning.. Nothing serious. Muscle cramps.. Burning in my finger tips.. Swollen ankles.. Nausea.. Light headed.. Diarrhea.. Fatigue.. All of this went away . I also experienced a rash all over my body but that wasn't caused by IB it was from taking Allopurinol that I was taking to control the uric acid. They took me off of it and gave me steroids and thankfully it went away.
Yesterday I started Venetoclax and was at the hospital all day. So far so good. As I write this I'm at MD Anderson waiting for results before I can take V again. Sometimes I feel sick to my stomach and feel dizzy but I think its because my body is trying to get use to the drugs. At least I hope that's why otherwise its probably the CLL.
I had a CT Scan and a BMB before I started V and the doctor said he is pleased so far with my results.. My numbers look good!