During the first year after diagnosis (Christmas 2012) I had big problems with AIHA that the CLL caused. I really did not know how long I had left and spent lots of sleepless nights worrying about the kids and their growing up.
I set myself the goal of lasting long enough to see both kids off to Uni. 8 years later, yesterday we dropped my daughter off at Bristol, so I have achieved this original goal!! Whilst her fresher life will not be great, I am sure she will find some way of both learning and enjoying.
I have to re-set my goal....and it is to see my current consultant off into retirement (though I don't know how many more years this is but I sure well over 10 - 15). She was the one who persuaded me to have a splenectomy to stop the AIHA.......so I can't let her down now!!
Many thanks for the wise words and support you have all given - long may it continue!!