ANC very low: Hi I got my blood taken and I had... - CLL Support

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ANC very low

littledab profile image
10 Replies

Hi I got my blood taken and I had a CAT scan on my lungs because they had found a shadow and it came out that it’s growing a little bit.. going to repeat test in a couple of months..

but the doctor took me off imbruvica for two weeks and Bactrim that I’ve been taken every other day.. due to low ANC .. absolute neutrophil count

any thoughts are welcome!

Thank you!!

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littledab profile image
littledab
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10 Replies
PlanetaryKim profile image
PlanetaryKim

When I was taken off Imbruvica due to big sudden drop in ANC, it just took a week or 2 before neutrophils rose enough that I could go back on. Hoping the same for you!

kim

littledab profile image
littledab in reply to PlanetaryKim

Thank you! That makes me feel so much better!! I pray it will, blood work next week!!

👏🏻🤗

PlanetaryKim profile image
PlanetaryKim in reply to littledab

Good luck on next week's blood work! :)

AussieNeil profile image
AussieNeilPartnerAdministrator

If your bone marrow stops making neutrophils, it takes about 10 days from when it restarts before new neutrophils appear in your blood. Neutrophils only last a matter of days at most. I presume you are aware of the importance of protecting yourself against infection, I including which foods to avoid?

If your neutrophils don't recovery, you may need G-CSF injections to jump start your bone marrow.

Neil

littledab profile image
littledab in reply to AussieNeil

Thank you! I am hoping it goes back up! 🙏

carol_h profile image
carol_h

take good care of yourself, stay away from people for a bit until your counts go back up, which they will. Maybe ask your doctor if you should take additional vitamin c. 🙏❤️

littledab profile image
littledab in reply to carol_h

Thanks i am! No she said nothing to do with vitamins.. xo 😘

Panz profile image
Panz

I had been in Imbruvica 420 for 6 months when they pulled me off due to two types of pneumonia and shadows on both lungs. A PET scan ruled out cancer and I dealt with pneumonia for several months as well as very low ANC .5-1.0. I have since been off he Imbruvica for a full year and on Watch and Wait and doing very well. WBC is slowly climbing and the doctor told me when I once again reach treatment stage it won’t be Imbruvica. My ANC is back to 1.5-2.5. I do receive IVIG every 4 weeks and have for 2-3 years. I have had CLL for nearly 31 years and doing great.

Panz 🙏💕☘️

Wetumpka profile image
Wetumpka in reply to Panz

Wow???31 years...how great!

littledab profile image
littledab in reply to Panz

Wow that is awesome 😎 i have been on it for 6 months .. wbc was 230,00 when i started miracle drug...

i have CLL for 5 years.. i hope this works and my ANC GETS BACK TO NORMAL RANGE

Thanks for sharing that great news!!

😉👍🤗

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