UK webinar - CLL treatment a changing landscape

[Jm954]

Posted on behalf of HAIRBEAR_UK

When: Jun 29, 2020 11:00 AM London

We invite you to Join us for an upcoming webinar on chronic lymphocytic leukaemia (CLL) treatment.

Register here us02web.zoom.us/webinar/reg...

We will joined by:

Professor Anna Schuh, consultant haematologist, Chair of the NCRi CLL clinical research group and Director of Molecular Diagnostics at Oxford University.

Dr David Allsup, Senior Lecturer in Haematology and CLL lead at Queens Centre for Oncology and Haematology at Castle Hill Hospital, Hull.

Helen Knight, CLL Nurse Specialist at Nottingham University Hospital.

The panel will discuss and answer your questions about how CLL is treated and how care is provided today. What to expect moving forward as lock-down is lifted, clinical trials trials restart and new treatments come available in a changing landscape

Sounds like just what we all need at the moment - to hear from expert specialists at the top of their profession.

Jackie

[mrsjsmith]

Thank you Jackie.

Just as well I have now mastered Zoom. For those of you that haven’t done yet, if I can do it so can you.

Colette x

[DebKat999 in reply to mrsjsmith]

Excellent Colette x🙂👍

[mrsjsmith in reply to DebKat999]

Thank you Hun.

Colette x

[Psmithuk]

I’ve registered and hope I remember it!

Cx

[Peggy4]

Can I ask my usual question. Will you let us know if it’s available to watch later?

I find these webinars great!

Peggy 😀

[Jm954 Administrator in reply to Peggy4]

Almost certainly Peggy, we'll post details when it's available

Jackie

[Peggy4 in reply to Jm954]

Thank you. We’ve been so lucky to have these.

Peggy 😀

[HAIRBEAR_UK Founder Admin]

Thanks Jackie, this is a good chance to get a fix on things and hear from both the consultants and clinical nurse specialists how treatment and care is being provided in different regions. There are some very positive developments

[Canuck901]

It’s changing but not fast enough , I believe there is enough data out there to adopt these new combo therapies.

Should be I interesting to see what they have to say

[Jm954 Administrator in reply to Canuck901]

Hi Canuck901

Canada is a bit behind the curve with the non chemo treatments from what I know (I could be wrong now) and that is such a pity. So much suffering and sometimes, no need for it.

Occasionally the drug companies don't help us. For example by selecting a very restricted group for the clinical trials and then it can be argued that there is none or little evidence of cost effectiveness in other groups so the drug is not approved. So frustrating, especially as the trials can take many years to show significant benefits to patients.

Research has also really slowed down because of COVID, not just the practical research but with approvals for trials being focused almost exclusively on COVID other studies have languished and not got off the ground. As if that wasn't enough, charity income streams have dried up as fund raising events have been cancelled and they are struggling with potential deficits. Difficult times

It's a multifaceted problem.

Jackie

[Canuck901 in reply to Jm954]

Jackie yes Canada moves at a snails pace for sure with change , we have free health care but it’s not the greatest , it’s reactive and no proactive

Service is adequate and or below adequate , there is no competition so Most doctors here don’t care as they will have more partients to see no matter what their service level is like.

I would definitely like to see a 2 tier health care system in Canada

Lots of money gets caught up in administration and bureaucracy and not enough to the hospitals , patients and people who need the care.

Get rid of the dinosaurs and let’s have some progression