Night sweats

[Chewy5]

How can I help my husband cope with his terrible night sweats? He’s getting very frustrated and angry. We are changing sheets twice a night.

[AussieNeil Partner Administrator]

Given your husband's poor health at the moment, I wonder if he should see his specialist? Frequent night sweats could be an indication that he should start treatment soon, or it could be related to his infection.

There are a number of replies in the Related Posts below or to the right of this post that you might find helpful. Some find an underlay that breathes helpful.

Neil

[PlanetaryKim]

Also very large thick bath towel can sometimes help. Might be able to soak the towel without soaking through to the sheet. It helped me in past when I had night sweats.

[stunned]

I bought a chill pillow, its a thin blue pillow that is cold to touch and it absorbs heat. As it was my face that got hot i placed it inside my pillowcase and it worked wonders.

Keeping a wet face cloth in the freezer in a plastic bag and taking it to bed, then i could merely wipe my face and neck., put it back in the bag and it stayed cold.

I hope you find something that works soon

Anne

[GMa27]

Probably time for treatment. He needs to see a specialist. 💕

[WinJ3]

I used a couple of large towels that helped some. I also needed to be treated around the time I was having those heavy sweating nights.

Win

[Hidden]

When I started to have night sweats it marked the end of W&W. I went from stage 0 to 3. My lymph nodes went crazy. I had fatigue and would fall asleep after dinner. At the time only FCR was available and I was un mutated. However, there were promising drug trials being rolled out. Eight months later I was in a drug trial. Start looking for the best drug trials.

[Chewy5 in reply to Hidden]

Thank you. When he was diagnosed a year and a half ago he was already stage 4, unmutated. His doctors still kept him on watch and wait because he didn’t have any symptoms. His team treats based on symptoms not numbers. He’s very healthy and active. This is the first time that he’s had any symptoms so maybe it is time. I know that his doctors spoke about him going on imbrutnib when it is time. My husband would rather not take that for the rest of his life. He is very sensitive to meds/pills and gets side effects from everything he’s ever taken.

[Hidden in reply to Chewy5]

Ask about Acalabrutinib. It is a second-generation BTK inhibitor that may have less side effects and be better tolerated. Ibrutinib is a first-generation drug. I would see if there were Acalabrutinib - Venetoclax trials. I assume that your husband has never been treated. This makes him valuable. Good test subjects are hard to find. A doctor at MDA once told me years ago that test patients are in short supply. Use this to your advantage.

[Chewy5 in reply to Hidden]

Thank you. Correct he has not been treated yet.

[Hidden in reply to Chewy5]

I was reading Andrew Schorr's Patient Power. He has an interview with Dr. Wierda (MDA). He talks about clinical trials. I think that you and your husband will find this to be relevant.

patientpower.info/chronic-l...