Night sweats: Hi everyone, I'm pretty sure I'm... - CLL Support

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Night sweats

GettinThruIt profile image
15 Replies

Hi everyone,

I'm pretty sure I'm overreacting but there's too many knowledgeable and helpful people here for me not to ask. I've always been a sweaty individual. When I exercise it doesn't take long for the sweat to pour since I was a kid. If I'm outside in the day the sweat often releases at night. So I can't quite tell if the nights when I wake up sweaty are just me being me or are they CLL night sweats. Is there anything particular about night sweats that would confirm? Like does it have to be really heavy or can it be light also? I feel it's tricky also because if I open the door at night the room is cooler so if it's closed and hotter I might just have a tendency to sweat. Anyways, if anyone could chime in with opinions or descriptions of CLL night sweats I would appreciate it.

Cheers

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GettinThruIt profile image
GettinThruIt
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15 Replies
DRM18 profile image
DRM18

Hi GettinThruIt,

Official night sweats are rather alarming, like, necessitating a change of clothes, which can actually be wrung out; maybe even needing to change the sheets, etc.

Light sweating in a warm room doesn't count.

I'm no doctor, but that's my diagnosis!

--Dave!

GettinThruIt profile image
GettinThruIt in reply to DRM18

thanks thats the info I was looking for much appreciated Dave!

baddttom profile image
baddttom in reply to DRM18

My DR. says "soaking" night sweats is a problem.

normal sweating is no concern

mdsp7 profile image
mdsp7

I had night sweats when I had bronchitis. They went away after I got better. Good luck!

GettinThruIt profile image
GettinThruIt in reply to mdsp7

Were they severe? Like you were drenched and whatnot? I assume the night sweats were related to your CLL but also a secondary reaction to the bronchitis?

mdsp7 profile image
mdsp7

The doctor seemed to think the fact of the night sweats indicated I should have antibiotics. The night sweats could be severe but were not always. I have had night sweats at other times, too, often associated with another illness I was fighting.

Stewie_1968 profile image
Stewie_1968

Hi with night sweats you would have to change the bottom sheet and T shirts if you were having night sweats , there is a massive difference to waking up sweating during the night and night sweats Hope this answers your question, hope your well

Stewie

GettinThruIt profile image
GettinThruIt in reply to Stewie_1968

thanks stewie I guess that pretty much settles it have a good 1

Poodle2 profile image
Poodle2

Just echoing others. My consultant told me that if I get CLL night sweats, I will know for sure. She was right. They are totally drenching. You need a change of clothes, you literally feel like you have just had a shower, at least that's what it was like with me, your bed sheets are drenched. I had to sleep on a waterprootf matress protector and a thick towel which would soak it in and could be changed. I sometimes sweat at night, usually when I have an infection that my body is fighting. I think you would know if your sweating was related to CLL. I only experienced it just before I started treatment.

Tommays56 profile image
Tommays56

My CLL night sweats have our mostly from low blood sugar that I can’t control while I sleep

BUT various infections that have sneaked past my immune system definitely bring out the worst in it

leftysfsl1945 profile image
leftysfsl1945

I had Night sweats and weight loss from CLL.

My Naturopathic doctor put me on a regimen that featured NFH EGCG SAP (Green Tea Extract) and Carlson Gamma E-Gems (Vitamin E).

In less than a month my Night Sweats and weight loss stopped.

Highly recommend that you buy the following book:

The Metabolic Approach to Cancer by Dr. Nasha Winters.

According to my Hematologist, I am currently in Partial Remission.

It is recommended that your Naturopathic doctor be a fellow of the American Board of Naturopathic Oncology (FABNO).

After a "rock start" my Hematologist and Naturopathic doctor get along and BOTH are happy with my current status.

LeoPa profile image
LeoPa

I too, have a good metabolism and a great internal furnace to keep me warm. I hate to sleep in warm rooms and I love to sleep in very cold ones. Never had CLL sweats but anything above 22° C in the room and I perspire. I like 19° C more 😁. One thing I noticed is that I am never warm through the night if I fast. Or skip dinner. As if the thermostat inside is turned down. Less energy in, less energy wasted on overheating the body.

Sepsur profile image
Sepsur

I’ve never liked being too hot at night. I started to get more frequent & heavier night sweats & I, like you, could be prone to night sweats anyway. Periodically steroid treatment for chest infections left me with type 2 diabetes which also caused night sweats. CLL night sweats meant sleeping on a towel wasn’t sufficient, it meant a change of bed sheets & pyjamas more than once a night.

Bobby9toes profile image
Bobby9toes

When I had the “night sweats” they were so severe that I had to change my night clothes sometimes twice during the night. I put a towel under my back to keep the bottom sheet dry. It was awful. Thank goodness I don’t get them anymore.

Jan

Doggoneit101 profile image
Doggoneit101

Night sweats are drenching! I used to wake up with wet PJ's, soaking wet sheets, wet hair, and wet pillows. I ran my AC on 69 to try to help but nothing helps with night sweats. I had night sweats for a year before I started treatment. You would definitely know the difference. Some nights I changed PJ's multiple times. Hubby said I heated up like a furnace as soon as I fell asleep. Definitely woke me up from a dead sleep to change PJ's and throw down a towel until morning. If you are having them you need to let your oncologist know.

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