I'm pretty sure I'm overreacting but there's too many knowledgeable and helpful people here for me not to ask. I've always been a sweaty individual. When I exercise it doesn't take long for the sweat to pour since I was a kid. If I'm outside in the day the sweat often releases at night. So I can't quite tell if the nights when I wake up sweaty are just me being me or are they CLL night sweats. Is there anything particular about night sweats that would confirm? Like does it have to be really heavy or can it be light also? I feel it's tricky also because if I open the door at night the room is cooler so if it's closed and hotter I might just have a tendency to sweat. Anyways, if anyone could chime in with opinions or descriptions of CLL night sweats I would appreciate it.
Cheers
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GettinThruIt
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Official night sweats are rather alarming, like, necessitating a change of clothes, which can actually be wrung out; maybe even needing to change the sheets, etc.
Were they severe? Like you were drenched and whatnot? I assume the night sweats were related to your CLL but also a secondary reaction to the bronchitis?
The doctor seemed to think the fact of the night sweats indicated I should have antibiotics. The night sweats could be severe but were not always. I have had night sweats at other times, too, often associated with another illness I was fighting.
Hi with night sweats you would have to change the bottom sheet and T shirts if you were having night sweats , there is a massive difference to waking up sweating during the night and night sweats Hope this answers your question, hope your well
Just echoing others. My consultant told me that if I get CLL night sweats, I will know for sure. She was right. They are totally drenching. You need a change of clothes, you literally feel like you have just had a shower, at least that's what it was like with me, your bed sheets are drenched. I had to sleep on a waterprootf matress protector and a thick towel which would soak it in and could be changed. I sometimes sweat at night, usually when I have an infection that my body is fighting. I think you would know if your sweating was related to CLL. I only experienced it just before I started treatment.
I too, have a good metabolism and a great internal furnace to keep me warm. I hate to sleep in warm rooms and I love to sleep in very cold ones. Never had CLL sweats but anything above 22° C in the room and I perspire. I like 19° C more 😁. One thing I noticed is that I am never warm through the night if I fast. Or skip dinner. As if the thermostat inside is turned down. Less energy in, less energy wasted on overheating the body.
I’ve never liked being too hot at night. I started to get more frequent & heavier night sweats & I, like you, could be prone to night sweats anyway. Periodically steroid treatment for chest infections left me with type 2 diabetes which also caused night sweats. CLL night sweats meant sleeping on a towel wasn’t sufficient, it meant a change of bed sheets & pyjamas more than once a night.
When I had the “night sweats” they were so severe that I had to change my night clothes sometimes twice during the night. I put a towel under my back to keep the bottom sheet dry. It was awful. Thank goodness I don’t get them anymore.
Night sweats are drenching! I used to wake up with wet PJ's, soaking wet sheets, wet hair, and wet pillows. I ran my AC on 69 to try to help but nothing helps with night sweats. I had night sweats for a year before I started treatment. You would definitely know the difference. Some nights I changed PJ's multiple times. Hubby said I heated up like a furnace as soon as I fell asleep. Definitely woke me up from a dead sleep to change PJ's and throw down a towel until morning. If you are having them you need to let your oncologist know.
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