Mouth ulcers : Has anyone any good remedies for... - CLL Support

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Mouth ulcers

Workers profile image
Workers
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Has anyone any good remedies for the most painful mouth ulcers ,they are driving me crazy šŸ˜¢

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annmcgowan profile image
annmcgowan

Hi I like difflam products. They do a mouth wash, gel and spray. They also do sweets that can be carried with you when out and about. I use these when I have ulcers. I also found germaline complete and igloo useful.

I recently started to use Gengigel mouth wash to prevent ulcers. It has worked really well for me.

If the ulcers do not respond your doctor can prescribe oral or systemic steroids.

Good luck

Ann

country76 profile image
country76

My reply some how ended up on another post. I take 2 Brazil nuts daily, they worked very good however occasionally I had a few break though so I went to plan B and add a drop of oregano oil on my toothbrush, don't swallow, swish and spit out. I have no mouth sores.

Stretch1 profile image
Stretch1

I use hydrogen peroxide - swish in mouth in morning in place of mouthwash - itā€™s cheap and it works. I also gargle with it when my left tonsil infects periodically - CLL is like a game of Wack a Mole - just when you think the infections are under control - something new pops up

Psalm22-3 profile image
Psalm22-3 in reply to Stretch1

H2O2 mouth rinse works like a charm.

UKfulloflife profile image
UKfulloflife

Difflam mouth wash. I had to stop Ibrutinib because of really severe Mucositis which started as 'ulcers' Of all the treatments I was prescribed by the hospital (including Morphine!) Difflam was the most effective. If you start losing weight because you can't eat, do contact your cnsultant. Hope you get some relief soon.

blowinginthewind profile image
blowinginthewind

I too have brazil nuts with my morning medication, have done for many years. I was told to have them - actually ones coated in high cocoa content dark chocolate - to boost the endorphins related to pain control, and to help with depression.

1935husband profile image
1935husband

I just got rid of the only one with baking soda. 3 times a day.

Got a prescription for a Nystatin liquid but was gone before I received it.

Suzer1553er profile image
Suzer1553er

Try the drug colchicine. It was developed for gout but miraculously ends mouth ulcers.

Kmegood profile image
Kmegood

I had gum ulcers after my chemo and went to a dental surgeon who treated me with steroids and some ointment dont recall which ointment it was 5 years ago. I remember the pain was terrible until it was treated .

Magic mouth wash did nothing to help.

My Dr. prescribed Nystatin liquid. Swish it around in your mouth and swallow it or spit it out. Worked fairly well, plus I used GlycoThymaline mouthwash and a hydrogen peroxide based mouthwash once or twice a day.

Ashlar677 profile image
Ashlar677

When I feel the "tinkle" of a mouth or lip sore I take L-lysine seem to reduce the time and pain to heal, I take 1 pill, 2 or 3 times a day. Check with your Dr.

Hoffy profile image
Hoffy

Oregano oil worked best for me. Just 1 drop on tooth brush and paste. It is strong. I some times rinse it off a bit too before.

I have 1 Brazil nut a day for selenium.

Be well,

Hoffy

mrsjsmith profile image
mrsjsmith in reply to Hoffy

Oregano oil seems to have a number of uses ! I bought to help with toe nail fungus !

Colette

Begone profile image
Begone

I haven't tried, but heard that the herb Burdock is good. Has anyone else tried this?

I'm going to start looking for choc coated Brazil nuts to start my day!

Fran57 profile image
Fran57

Hello. Iā€™m fortunate in that I donā€™t get mouth ulcers, but I have been told that putting Marmite on them is helpful.

Fran šŸ˜‰

KatieBlue profile image
KatieBlue

Following. Have a prescription mouthwash, dexamethasone, but they donā€™t want me to use it all the time. And I havenā€™t had to. But have had bouts of mouth sores and it is not pleasant.

I have used over-the-counter ā€œKank-Aā€ and just picked up some numbing lozenges and spray, but havenā€™t tried those yet.

Workers profile image
Workers in reply to KatieBlue

Thanks to you all for your ideas, I will certainly be trying them ,these are the worst bit of my treatment,other wise I could say I am lucky !

heal11purple profile image
heal11purple

Hello use 1-2 drops lemon essential oil 2x day. Yes it will probably sting but you'll see it get smaller every day. You'll know it's healing as the sting gets less & less

Ellieoak profile image
Ellieoak

Dear Workers, Call your Doctor ! He can prescribe Nystatin liquid. It was really helpful. Anna

Hectanooga profile image
Hectanooga

Oil of oragano. It was a tip from this site and it really works for me. I put a couple of drops on my toothbrush along with the paste. You can also drop it in water and take orally.

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