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Dear Friends and Supporters of the CLL Society,
I interviewed Dr. Rick Furman to set the stage for how to best consider some of the new clinical trial data, especially where chemotherapy is being combined with novel agents. Watch the interview.
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Deb Simms is a fellow CLL patient, earlier trialist, and advocate for fellow CLLers around the world. Deb leverages her considerable chops as a news reporter to interview me at ASH 2018.
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Genentech’s Patient Connect Program
Genentech is seeking patients who are being treated with VENCLEXTA® (venetoclax) and who may be interested in participating in Genentech’s Patient Connect program and sharing their experience with other patients, caregivers, and healthcare professionals. Their insights and perspectives may potentially help shape services that are intended to support, inform, and empower the patient community.
If you are interested contact:
Anna Cunningham, Director of Advocacy and Recruitment. anna@mypatientstory.com DL: 757-707-5683
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Register now for our post-ASH CLL Society Educational Forums in February and March:
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Join us live or for online streaming at our first 2019 post-ASH CLL Society Patient Educational Forum, Feb. 9th at the City of Hope.
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Our second live 2019 post-ASH CLL Society Patient Educational Forum will be in Charlotte, NC on Feb. 23.
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March Educational Forums registration now open!
March 2, 2019 -Swedish Hospital, Seattle, WA
March 9, 2019 Oregon Health and Science University, Portland, OR
March 16, 2019 MD Anderson Cancer Center, Houston, TX
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NeedyMeds (needymeds.org) is a CLL Society partner that helps folks find assistance with their medication costs.
Please pick up a free NeedyMeds medication discount card at any CLL Society Support Group or Patient Educational Forum.
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Their upcoming Becoming an Empowered Patient is scheduled for Wednesday, February 13 @ 1:30PM ET and will cover how advocating for yourself and being an active part of your own healthcare team can improve your health, something close to our hearts.
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Please Participate in our Surveys
Thanks to all of you who have completed our brief survey for the attendees to our local support groups. If you attend one of our groups and haven’t completed the survey, please click this link and take the two minutes to do so. Your feedback helps us grow stronger
Whether you are a patient or a caregiver, please complete our brief caregiver survey (found in the bottom left corner) to help us enlighten the professional community about the challenges facing caregivers.
If you belong to one of our many support groups, please complete our annual survey so that we can better serve you.
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San Diego CLL Support Group
In conjunction with UCSD, we’re in the process of rebooting our San Diego CLL Support Group. If you were attending before or would like to begin attending again, please take our short interest survey.
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New LLS Patient Financial Assistance Program
Now open! The Leukemia & Lymphoma Society has a new Patient Financial Assistance program for Blood Cancer patients in active treatment. Click here to learn more about this new assistance program.
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Prime Archived Webinars Now Online!
Prime Education in partnership with the Leukemia & Lymphoma Society (LLS) and The CLL Society has just posted two new FREE archived webinars! Click here for more information!
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CLL Society Sponsored Support Group Meetings Coming Up!
The CLL Group for Southeast Louisiana – Wednesday, January 30th at 7:00 PM
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The New York CLL Support Group – Sunday, February 3rd at 3:00 PM
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CLL and Indolent Blood Cancers Support Group – Monday, February 4th at 6:00 PM
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Leukemia and Lymphoma Society – Tucker – Family Support Group – Tuesday, February 5th at 7:00 PM
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The CLL Information & Support Group of Rockland County NY – Thursday, February 7th at 7:00 PM
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Central Massachusetts CLL Support Group – Saturday, February 9th at 12:30 PM
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Seattle-Olympic Peninsula CLL Support Group – Saturday, February 9th at 1:00 PM
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Orlando CLL Support Group – Saturday, February 9th at 2:00 PM
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Philadelphia CLL Patient Support Group – Saturday, February 9th at 2:00 PM
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Atlanta Metro CLL Support Group – Sunday, February 10 at 3:00 PM
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Lymphoma Research Foundation Sponsored Meetings
Wednesday, January 30, 2019 from 6:00 PM to 8:30 PM in Philadelphia, PA
The Lymphoma Research Foundation invites you to attend a FREE program: Ask the Doctor About Lymphoma: Updates on Lymphoma and Treatment Options at the Philadelphia 201 Hotel (formerly Sheraton Philadelphia Downtown Hotel) featuring Pierluigi Porcu, MD from Jefferson University. Find out more information and register here.
