CLL SOCIETY'S ASH POSTER on our Free second op... - CLL Support

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CLL SOCIETY'S ASH POSTER on our Free second opinion program plus two important papers from ASCO

bkoffman
bkoffmanCLL CURE Hero

Hi,

Just back from a frenetic and fantastic ASH, but still have news to share from ASCO.

But first here is a link to our poster on our free second opinion program:

4716 An Innovative Telemedicine Platform to Provide Expert Access to Patients with Chronic Lymphocytic Leukemia (CLL)

cllsociety.org/publications...

Here are two more of my reviews of the 10 ten abstracts from ASCO 2019:

Surviving CLL is only part of the story if we are going to succumb to second cancers. This ASCO abstract studies second cancers in CLL patients on ibrutinib or acalabrutib.

cllsociety.org/2019/12/asco...

In my #7 of the top 10 CLL abstracts from ASH, I review the encouraging data on the benefits of transplants for Richter’s Transformations.

cllsociety.org/2019/12/asco...

Stay strong.

We are all in this together.

Brian

Brian Koffman MDCM (retired) MS Ed

Co-Founder, Executive VP and Chief Medical Officer

CLL Society, Inc

cllsociety.org

10 Replies
oldestnewest

Brian - A very big Thank You from all us CLL patients for your tireless efforts to disseminate all this info from ASH. We all reap countless benefits from all your labors on our behalf. Be Well - Captain cujoe

bkoffman
bkoffmanCLL CURE Hero in reply to cujoe

Thanks

Brian, in the second cancer study, was there any comparison between those that had previous treatments and those than had the BTK inhibitors as their only treatment? Seems that would be important to look at.

cllady01
cllady01Volunteer

Thank you!

I so appreciate your work. For me, you have a way of presenting the research information in an accessible manner. Because many CLL patients live for a long time with their cancer, the landscape of treatment evolves. For those of us without a medical background, keeping current with the options is important. Thank you!

More Good Work.

Thank You

JM

Thank you Brian! The second opinion program was incredibly valuable toward calming my nerves (and finding a specialist!) when I was first diagnosed.

bkoffman
bkoffmanCLL CURE Hero in reply to jijic

Thanks.

Thank you also, so much Brian.

I think I have a specialist for just about every organ system. It amazes me that most if not all of them are either unaware of the increased risk of secondary neoplasms among CLL patients or minimize the significance. At least they are willing to continue to survey my “parts” in their area at my request.

I look forward to seeing Dr. Byrd next time (Sept) and will ask if thinks it is reasonable to test my CD4/CD8 ratio. When I first spoke to Dr. Byrd about Acalabrutinib he said he thought it wasn’t as effective at preserving or improving partial immune function. This time (four months ago) he was getting excited about Acalabrutinib.

Ron

bkoffman
bkoffmanCLL CURE Hero in reply to CaptRon1976

I think the early data on Acalabrutinib looks strong

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