I posted here once, about 6 months ago. I am a 34 yeard old dutch male from Amsterdam, and i have CLL with unfavorable prognosis. I had FCR, and some other meds over the course of 11 years.
Right now i am on Ibrutinib and am being threated by Prof. Dr. Kater at the Amsterdam hostpital 'AMC', i love him, cause he kept me alive for the last 8 years But i hate the hospital, so i stopt going there on regular basis.
At first i took 3 capsules of ibrutinib, but while being threated with ibrutinib, at the very start of the threatment, i ruptured my spleen and developed pains in my stomach. Also had to do some radiation therapie to make my spleen smaller.
Later the dose was lowered to 2 capsules a day together with medication to protect my stomach.
At the moment i havent had my blood checked for at least 3 months, but my swollen lymph nodes are hardly there anymore. I am going to give blood this monday.
I dont really have any more pain in my stomach, except for some sporadius days. But i do have bleeding teethgum and my teethgum is continuesly infected. At least it feels infected. But not at a point that it gets annoying.
Is it normal for ibrutinib to cause this? I tought i had read it somewhere, but cant find the article anymore.
Hope you are all doing great and keep your chin up and chest forward during your struggle.